Dystonia Medical Research Foundation
A family foundation that Sam and Fran Belzberg began in 1976 and that grew into a community of 50,000 and the administrative backbone of dystonia research, while saying plainly that it hopes one day to close its doors.
Financial profile
Dystonia Medical Research Foundation · EIN 95-3378526 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $3,654,855 | $3,435,644 | $0 | $3,242,781 | $5,967,896 | Dec 2025 |
| FY2024 | $3,214,752 | $2,851,281 | $0 | $2,959,323 | $5,124,288 | Dec 2024 |
| FY2023 | $2,986,859 | $2,774,096 | $128,610 | $3,393,987 | $4,852,619 | Dec 2023 |
| FY2022 | $2,569,110 | $2,391,324 | $0 | $2,496,291 | $4,796,153 | Dec 2022 |
| FY2021 | $2,942,734 | $2,761,025 | $0 | $2,472,524 | $5,386,370 | Dec 2021 |
| FY2020 | $2,515,900 | $2,418,390 | $0 | $2,250,219 | $4,665,557 | Dec 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies DMRF is read alongside.
FSARA
Friedreich's Ataxia Research Alliance
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research…
31 companies named
MGFA
Myasthenia Gravis Foundation of America
The foundation a mother started in 1952 when her teenage daughter was diagnosed with a rare disease that had…
18 companies named
CPARF
Cerebral Palsy Alliance Research Foundation
A 501(c)(3) foundation accelerating scientific innovation for people with cerebral palsy and disability…
14 companies named
IRSF
International Rett Syndrome Foundation
The first nonprofit to focus only on Rett syndrome, a parents' cause joined in 2007 by a parents' research…
19 companies named
TSC Alliance
TSC Alliance
A community that four mothers started in Southern California in 1974 and that has grown into the research and…
59 companies named
Who backs DMRF
Every company DMRF names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| AbbVie | Foundation donor | AND AAD AAN AAO AAO +3 |
| Goldman SachsPublished as Goldman Sachs & Co. | Foundation donor | APGA AFP CPARF CDBA CFC +3 |
| Foundation donor | AAA ARF ACC AAF AAS +3 | |
| IpsenPublished as Ipsen Biopharmaceuticals, Inc. | Foundation donor | AAN AAPMR AACR AANEM ACG +3 |
| Johnson & JohnsonPublished as Johnson & Johnson Family of Companies | Foundation donor | AMCP AcademyHealth ACS AEE AAD +3 |
| Medtronic | Foundation donor | AMSN ACS ASCA AAFP AAPMR +3 |
| Samsung | Foundation donor | AAPMR ACVR AMSSM ASRT AAV +3 |
| Paramount, Inc. | Foundation donor | ARF ASA AWCI ATW GMS +1 |
| The Hershey Company | Foundation donor | Delta Zeta Foundation GBACC GMC HRCC NACS +1 |
| Merz Therapeutics | Foundation donor | AAPMR AAP CPARF GRCC |
| Snap-onPublished as Snap-on Tools | Foundation donor | ACTE S |
| Wakefern Food Corporation | Foundation donor | NGA NGA Foundation |
| OmniSource | Foundation donor | FEF |
| Revance Therapeutics | Foundation donor | AAPMR |
| Stifel Financial | Foundation donor | MCCI |
| Wegmans Food Markets | Foundation donor | IAFP |
| Allied Asset Management | Foundation donor | Only DMRF, so far |
| Alta Equipment Group | Foundation donor | Only DMRF, so far |
| East River Energy | Foundation donor | Only DMRF, so far |
| Gershow Recycling | Foundation donor | Only DMRF, so far |
| Impact HVAC | Foundation donor | Only DMRF, so far |
| K Creative GroupPublished as Norie Knezetic/K Creative Group, Inc. | Foundation donor | Only DMRF, so far |
| KS&R | Foundation donor | Only DMRF, so far |
| Law Office of George J. Wall | Foundation donor | Only DMRF, so far |
| Lindsay Hart | Foundation donor | Only DMRF, so far |
| Mane Street Cigars & Lounge | Foundation donor | Only DMRF, so far |
| McManus Lorey Funeral Home | Foundation donor | Only DMRF, so far |
| Medford Fast Lube | Foundation donor | Only DMRF, so far |
| Millennium Consultancy USA | Foundation donor | Only DMRF, so far |
| Mossing Spas & More | Foundation donor | Only DMRF, so far |
| Motric Bio | Foundation donor | Only DMRF, so far |
| NAI DiLeo-Bram & Co. | Foundation donor | Only DMRF, so far |
| Pace Window and Door | Foundation donor | Only DMRF, so far |
| Rudi's Bar and Grill | Foundation donor | Only DMRF, so far |
| Satellite Advertising & Design | Foundation donor | Only DMRF, so far |
| Sparkle Edge Cleaning Service | Foundation donor | Only DMRF, so far |
| Strickland's Steakhouse | Foundation donor | Only DMRF, so far |
| The H Group | Foundation donor | Only DMRF, so far |
| Topsy Turvy Brewery | Foundation donor | Only DMRF, so far |
| US Pharma Lab | Foundation donor | Only DMRF, so far |
| Vesta DesignPublished as Vesta Design/Josh Huskins | Foundation donor | Only DMRF, so far |
| Vima Therapeutics | Foundation donor | Only DMRF, so far |
| Wagner's Market | Foundation donor | Only DMRF, so far |
Sources: 2 published lists, read October 2026
Clinical Fellowship Program. Read October 7, 2026. Companies funding DMRF clinical fellowships that train movement disorder specialists.
Thank You 2025 Donors! (DMRF 2025 Annual Report). Read October 7, 2026. Companies listed among donors in the DMRF 2025 Annual Report.
Who backs DMRF's peers, but not DMRF
Companies named publicly by at least one of DMRF's five peer societies, and not found in DMRF's reviewed public records.
| Company | FSARA | MGFA | CPARF | IRSF | TSC Alliance | Peers |
|---|---|---|---|---|---|---|
| AmgenPublished as Amgen Rare Disease | Named | Presenting Partners | Defender | 3 of 5 | ||
| UCBPublished as UCB (logo) | Collaborating Partners | Gold Sponsor | Benefactor | 3 of 5 | ||
| Biogen | Core Program Sponsor | Benefactor | 2 of 5 | |||
| Lundbeck | Named | Protector | 2 of 5 | |||
| NovartisPublished as Novartis (logo) | Collaborating Partners | Named | 2 of 5 | |||
| Acadia PharmaceuticalsPublished as Acadia | Presenting Sponsor | 1 of 5 | ||||
| Aeovian Pharmaceuticals | Sponsor | 1 of 5 | ||||
| AFCO Insurance Premium Finance | Advocate | 1 of 5 | ||||
| AkinPublished as Akin R_SG-02 | Named | 1 of 5 | ||||
| AlexionPublished as Alexion (logo) | Presenting Partners | 1 of 5 | ||||
| Alexion Pharmaceuticals | Named | 1 of 5 | ||||
| Allied HVACR Services | Advocate | 1 of 5 | ||||
| Amalie Oil Company | Named | 1 of 5 | ||||
| Amneal Pharmaceuticals | Advocate | 1 of 5 | ||||
| Anavex Life SciencesPublished as Anavex | Named | 1 of 5 | ||||
| Anovo | Bronze Sponsors | 1 of 5 | ||||
| Arborscapes | Advocate | 1 of 5 | ||||
| ArcellxPublished as Arcellx (logo) | Supporting Partners | 1 of 5 | ||||
| argenxPublished as argenx (logo) | Presenting Partners | 1 of 5 | ||||
| AristocratPublished as Aristocrat Blue Logo | Named | 1 of 5 | ||||
| Arrowhead Pharmaceuticals | Named | 1 of 5 | ||||
| BarclaysPublished as Barclays-Logo | Named | 1 of 5 | ||||
| Beneficial Life Insurance | Defender | 1 of 5 | ||||
| Big Timber Cattle Company | Named | 1 of 5 | ||||
| Biohaven Pharmaceuticals | Named | 1 of 5 | ||||
| Biologics by McKesson | Named | 1 of 5 | ||||
| BridgeBio Pharma | Benefactor | 1 of 5 | ||||
| Brown & Brown | Named | 1 of 5 | ||||
| Cartesian TherapeuticsPublished as Cartesian (logo) | Collaborating Partners | 1 of 5 | ||||
| Cassava Sciences | Chair’s Circle | 1 of 5 | ||||
| Catalyst PharmaceuticalsPublished as Catalyst Logo | Collaborating Partners | 1 of 5 | ||||
| CEI Constructors | Regional Sponsors | 1 of 5 | ||||
| Cerevance | Named | 1 of 5 | ||||
| Chemistry Rx | Defender | 1 of 5 | ||||
| Citizen Health | Named | 1 of 5 | ||||
| CM Brown Nurseries | Regional Sponsors | 1 of 5 | ||||
| Columbia Food ServicePublished as Columbia Food Service Co., Inc. | Named | 1 of 5 | ||||
| CRD Associates | Advocate | 1 of 5 | ||||
| CVS Health | Protector | 1 of 5 | ||||
| Dei Rossi Marketing | Regional Sponsors | 1 of 5 | ||||
| Design Therapeutics | Named | 1 of 5 | ||||
| DiamiR | Friend Sponsors | 1 of 5 | ||||
| Duncan Real Estate | Named | 1 of 5 | ||||
| El Dorado Holdings | Named | 1 of 5 | ||||
| EMD SeronoPublished as EMD Serono (logo) | Supporting Partners | 1 of 5 | ||||
| Evernorth Health ServicesPublished as Evernorth Health Services (logo) | Supporting Partners | 1 of 5 | ||||
| Foley, Baron, Metzger & Juip | Named | 1 of 5 | ||||
| Founding FarmersPublished as Founding Farmers Alexandria | Advocate | 1 of 5 | ||||
| GD Energy Products | Advocate | 1 of 5 | ||||
| GondolaBio | Defender | 1 of 5 | ||||
| Greenwich Biosciences | Named | 1 of 5 | ||||
| Grin Therapeutics | Protector | 1 of 5 | ||||
| Hudson Bay | Named | 1 of 5 | ||||
| Huffman & Huffman Brothers-In-Law | Named | 1 of 5 | ||||
| ImmunovantPublished as Immunovant (logo) | Supporting Partners | 1 of 5 | ||||
| InfuCareRxPublished as InfuCareRx (logo) | Supporting Partner | 1 of 5 | ||||
| InsperityPublished as Insperity-Logo-300x64 | Named | 1 of 5 | ||||
| Jazz Pharmaceuticals | Chair’s Circle | 1 of 5 | ||||
| JefferiesPublished as Jefferies_Logo_Black_150dpi | Named | 1 of 5 | ||||
| Johnson SupplyPublished as Johnson HVAC Distribution | Our Supporters | 1 of 5 | ||||
| Keenova Therapeutics | Sponsor | 1 of 5 | ||||
| Kendra Scott | Advocate | 1 of 5 | ||||
| Kirkland & EllisPublished as Kirkland & Ellis (Elite Blue RGB) (5) | Named | 1 of 5 | ||||
| Knobbe MartensPublished as Knobbe, Martens, Olson & Bear, LLP | Defender | 1 of 5 | ||||
| Kriste Branding | Advocate | 1 of 5 | ||||
| Larimar Therapeutics | Core Program Sponsor | 1 of 5 | ||||
| Leon Max | Named | 1 of 5 | ||||
| Level Up Drywall | Regional Sponsors | 1 of 5 | ||||
| Lexeo Therapeutics | Named | 1 of 5 | ||||
| LivaNova | Sponsor | 1 of 5 | ||||
| Longboard Pharmaceuticals | Protector | 1 of 5 | ||||
| Macquarie | Named | 1 of 5 | ||||
| Mallinckrodt Pharmaceuticals | Named | 1 of 5 | ||||
| Marinus PharmaceuticalsPublished as Marinus | Named | 1 of 5 | ||||
| MassMutual | Named | 1 of 5 | ||||
| MassMutual SpecialCare | Sponsor | 1 of 5 | ||||
| MedPanel | Advocate | 1 of 5 | ||||
| Merck KGaAPublished as MERCK (logo), merckgroup.com | Collaborating Partners | 1 of 5 | ||||
| Meritex | Advocate | 1 of 5 | ||||
| MK Real Estate | Advocate | 1 of 5 | ||||
| Neurelis | Benefactor | 1 of 5 | ||||
| Neuren PharmaceuticalsPublished as Neuren | Named | 1 of 5 | ||||
| NeuroCores | Friend Sponsors | 1 of 5 | ||||
| Neurocrine Biosciences | Named | 1 of 5 | ||||
| Neurogene | Diamond Sponsors | 1 of 5 | ||||
| Newron PharmaceuticalsPublished as Newron | Named | 1 of 5 | ||||
| NMD PharmaPublished as NMD Pharma (logo) | Supporting Partners | 1 of 5 | ||||
| Nobelpharma | Title Sponsor | 1 of 5 | ||||
| Nobelpharma America | Benefactor | 1 of 5 | ||||
| Norbert E. Mitchell Company | Regional Sponsors | 1 of 5 | ||||
| Notis Professional Services | Named | 1 of 5 | ||||
| ObiPublished as Obi Robot | Named | 1 of 5 | ||||
| Odevo US | Advocate | 1 of 5 | ||||
| OpenNode | Defender | 1 of 5 | ||||
| Praxis Precision Medicines | Protector | 1 of 5 | ||||
| PsychoGenics | Defender | 1 of 5 | ||||
| PTC Therapeutics | Named | 1 of 5 | ||||
| PwCPublished as PwC_logo_rgb_colour_pos 1 | Named | 1 of 5 | ||||
| Raymond James Financial | Named | 1 of 5 | ||||
| Redline | Regional Sponsors | 1 of 5 | ||||
| RegeneronPublished as Regeneron (logo) | Supporting Partners | 1 of 5 | ||||
| Roya WellnessPublished as Roya Wellness (Bahareh Lazemizadeh) | Regional Sponsors | 1 of 5 | ||||
| Salesforce | Defender | 1 of 5 | ||||
| Savvy Socks | Regional Sponsors | 1 of 5 | ||||
| Servier | Named | 1 of 5 | ||||
| Shumaker, Loop & Kendrick | Named | 1 of 5 | ||||
| Skechers | Defender | 1 of 5 | ||||
| Smartbox | Named | 1 of 5 | ||||
| Solid Biosciences | Named | 1 of 5 | ||||
| Southern Pine Timber Products | Named | 1 of 5 | ||||
| Space Cow Media | Advocate | 1 of 5 | ||||
| Stealth BioTherapeutics | Named | 1 of 5 | ||||
| Stellar Realty | Named | 1 of 5 | ||||
| Take-Two Interactive Software | Advocate | 1 of 5 | ||||
| Taysha Gene Therapies | Diamond Sponsors | 1 of 5 | ||||
| Tobii Dynavox | Named | 1 of 5 | ||||
| Tom Bercu Presents | Named | 1 of 5 | ||||
| Total Care Rx | Advocate | 1 of 5 | ||||
| UBSPublished as UBS Logo | Named | 1 of 5 | ||||
| Upsher-Smith LaboratoriesPublished as Upshire Smith | Chair’s Circle | 1 of 5 | ||||
| Vanguard Protex Global | Named | 1 of 5 | ||||
| Vertex PharmaceuticalsPublished as Vertex (logo) | Supporting Partners | 1 of 5 | ||||
| Vor BioPublished as VOR (logo) | Supporting Partners | 1 of 5 | ||||
| Voyager Therapeutics | Named | 1 of 5 | ||||
| Wall Development Group | Regional Sponsors | 1 of 5 | ||||
| Wall Management | Defender | 1 of 5 | ||||
| Waste Connections | Regional Sponsors | 1 of 5 | ||||
| WaymoPublished as Waymo_logo_final | Named | 1 of 5 | ||||
| Wilspec Technologies | Named | 1 of 5 | ||||
| Your Bridge Wealth Management | Regional Sponsors | 1 of 5 |
The outside view
A family foundation that Sam and Fran Belzberg began in 1976 and that grew into a community of 50,000 and the administrative backbone of dystonia research, while saying plainly that it hopes one day to close its doors.
- Consensus
- Build
- Outward
- Volunteer
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Citadel and The Village.
Strengths
Not an official page of Dystonia Medical Research Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.