TSC Alliance
A community that four mothers started in Southern California in 1974 and that has grown into the research and drug development infrastructure of a rare genetic disease, measuring its own progress at every step.
Financial profile
National Tuberous Sclerosis Association Inc · EIN 95-3018799 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $9,807,320 | $6,133,143 | $2,653,098 | $9,133,802 | $16,048,406 | Dec 2025 |
| FY2024 | $10,000,895 | $7,048,334 | $2,105,029 | $8,660,018 | $15,366,113 | Dec 2024 |
| FY2023 | $10,016,383 | $6,747,948 | $2,815,353 | $8,467,648 | $13,997,348 | Dec 2023 |
| FY2022 | $8,909,542 | $7,016,851 | $2,720,317 | $8,063,684 | $12,454,846 | Dec 2022 |
| FY2021 | $9,015,987 | $5,769,053 | $2,234,262 | $6,869,562 | $11,608,986 | Dec 2021 |
| FY2020 | $5,128,164 | $4,345,011 | $792,685 | $5,422,190 | $9,462,561 | Dec 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies TSC Alliance is read alongside.
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
DSF
Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research…
6 companies named
FSARA
Friedreich's Ataxia Research Alliance
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research…
31 companies named
IRSF
International Rett Syndrome Foundation
The first nonprofit to focus only on Rett syndrome, a parents' cause joined in 2007 by a parents' research…
19 companies named
DMRF
Dystonia Medical Research Foundation
A family foundation that Sam and Fran Belzberg began in 1976 and that grew into a community of 50,000 and the…
43 companies named
Who backs TSC Alliance
Every company TSC Alliance names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Amgen | Foundation donor | AcademyHealth AAAAI AAFP AAN AAO +3 |
| Biogen | Foundation donor | AAN AAO AAI AANEM ACNM +3 |
| CVS Health | Foundation donor | AMCP ACGB AAFP AACP ACR +3 |
| Jazz Pharmaceuticals | Corporate partner | AASM ACNS ACC ACCP AES +3 |
| LundbeckPublished as Lundbeck Pharmaceuticals, Inc. | Foundation donor | AAN AES AHS APA IRSF +3 |
| Salesforce | Foundation donor | ACGB AFP AZA CCC CI +3 |
| UCB | Foundation donor | AAD AAN AANEM AANN ACNS +3 |
| MassMutual | Corporate partner | L NAIFA NEC Out & Equal PL +2 |
| Keenova Therapeutics | Foundation donor | AASLD ACCP ACG ACR ANA +1 |
| Amneal Pharmaceuticals | Foundation donor | AAN AAPMR AHS FAH NACCHO |
| Kendra Scott | Foundation donor | ASAS CCFAS Delta Zeta Foundation FCCLA |
| LivaNova | Corporate partner | ACNS AES CNS INS |
| Waste Connections | Meeting sponsor | GVC OCCF CSATM TKF |
| Knobbe MartensPublished as Knobbe, Martens, Olson & Bear, LLP | Foundation donor | AIPLA IPOA NLBA |
| Neurelis | Foundation donor | AES NASN NBNA |
| Skechers | Foundation donor | ANCC APMA RIMS |
| Praxis Precision Medicines | Foundation donor | AAN AES |
| BridgeBio Pharma | Foundation donor | NHNPA |
| Chemistry Rx | Foundation donor | ACMGG |
| Grin Therapeutics | Foundation donor | AES |
| Nobelpharma America | Foundation donor | AES |
| Odevo US | Foundation donor | CAI |
| PsychoGenics | Foundation donor | AES |
| Upsher-Smith LaboratoriesPublished as Upshire Smith | Corporate partner | AES |
| Aeovian Pharmaceuticals | Foundation donor | Only TSC Alliance, so far |
| AFCO Insurance Premium Finance | Foundation donor | Only TSC Alliance, so far |
| Allied HVACR Services | Foundation donor | Only TSC Alliance, so far |
| Arborscapes | Foundation donor | Only TSC Alliance, so far |
| Beneficial Life Insurance | Foundation donor | Only TSC Alliance, so far |
| Cassava Sciences | Foundation donor | Only TSC Alliance, so far |
| CEI Constructors | Meeting sponsor | Only TSC Alliance, so far |
| CM Brown Nurseries | Meeting sponsor | Only TSC Alliance, so far |
| CRD Associates | Foundation donor | Only TSC Alliance, so far |
| Dei Rossi Marketing | Meeting sponsor | Only TSC Alliance, so far |
| Founding FarmersPublished as Founding Farmers Alexandria | Foundation donor | Only TSC Alliance, so far |
| GD Energy Products | Foundation donor | Only TSC Alliance, so far |
| GondolaBio | Foundation donor | Only TSC Alliance, so far |
| Kriste Branding | Foundation donor | Only TSC Alliance, so far |
| Level Up Drywall | Meeting sponsor | Only TSC Alliance, so far |
| Longboard Pharmaceuticals | Foundation donor | Only TSC Alliance, so far |
| Mallinckrodt Pharmaceuticals | Corporate partner | Only TSC Alliance, so far |
| Marinus PharmaceuticalsPublished as Marinus | Corporate partner | Only TSC Alliance, so far |
| MassMutual SpecialCare | Foundation donor | Only TSC Alliance, so far |
| MedPanel | Foundation donor | Only TSC Alliance, so far |
| Meritex | Foundation donor | Only TSC Alliance, so far |
| MK Real Estate | Foundation donor | Only TSC Alliance, so far |
| Nobelpharma | Corporate partner | Only TSC Alliance, so far |
| Norbert E. Mitchell Company | Meeting sponsor | Only TSC Alliance, so far |
| OpenNode | Foundation donor | Only TSC Alliance, so far |
| Redline | Meeting sponsor | Only TSC Alliance, so far |
| Roya WellnessPublished as Roya Wellness (Bahareh Lazemizadeh) | Meeting sponsor | Only TSC Alliance, so far |
| Savvy Socks | Meeting sponsor | Only TSC Alliance, so far |
| Space Cow Media | Foundation donor | Only TSC Alliance, so far |
| Take-Two Interactive Software | Foundation donor | Only TSC Alliance, so far |
| Tom Bercu Presents | Meeting sponsor | Only TSC Alliance, so far |
| Total Care Rx | Foundation donor | Only TSC Alliance, so far |
| Wall Development Group | Meeting sponsor | Only TSC Alliance, so far |
| Wall Management | Foundation donor | Only TSC Alliance, so far |
| Your Bridge Wealth Management | Meeting sponsor | Only TSC Alliance, so far |
Sources: 4 published lists, read October 2026
Annual Fund: Major Donors and Contract Revenue, Fiscal Year 2025. Read October 7, 2026. Companies listed among major donors and contract revenue in the FY 2025 Annual Report.
Comedy for a Cure 2025 sponsors. Read October 7, 2026. Company sponsors of the 24th Annual Comedy for a Cure in Los Angeles, April 2025.
Step Forward to Cure TSC 2025 sponsors. Read October 7, 2026. Company sponsors of the 2025 Step Forward to Cure TSC walk series, national and regional.
This website is made possible through sponsorships from. Read October 7, 2026. Companies credited in the site footer as sponsors of the TSC Alliance website.
Who backs TSC Alliance's peers, but not TSC Alliance
Companies named publicly by at least one of TSC Alliance's five peer societies, and not found in TSC Alliance's reviewed public records.
| Company | LF | DSF | FSARA | IRSF | DMRF | Peers |
|---|---|---|---|---|---|---|
| AbbVie | Named | 1 of 5 | ||||
| Acadia PharmaceuticalsPublished as Acadia | Presenting Sponsor | 1 of 5 | ||||
| Aetna | History Room Sponsor | 1 of 5 | ||||
| Alexion Pharmaceuticals | Named | 1 of 5 | ||||
| Allied Asset Management | Named | 1 of 5 | ||||
| Alta Equipment Group | Named | 1 of 5 | ||||
| Amalie Oil Company | Named | 1 of 5 | ||||
| Anavex Life SciencesPublished as Anavex | Named | 1 of 5 | ||||
| Anovo | Bronze Sponsors | 1 of 5 | ||||
| Arrowhead Pharmaceuticals | Named | 1 of 5 | ||||
| Big Timber Cattle Company | Named | 1 of 5 | ||||
| Biocodex USAPublished as biocodex logo | Named | 1 of 5 | ||||
| Biohaven Pharmaceuticals | Named | 1 of 5 | ||||
| Biologics by McKesson | Named | 1 of 5 | ||||
| Brown & Brown | Named | 1 of 5 | ||||
| Cerevance | Named | 1 of 5 | ||||
| Citizen Health | Named | 1 of 5 | ||||
| Columbia Food ServicePublished as Columbia Food Service Co., Inc. | Named | 1 of 5 | ||||
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 5 | ||||
| Design Therapeutics | Named | 1 of 5 | ||||
| DiamiR | Friend Sponsors | 1 of 5 | ||||
| Duncan Real Estate | Named | 1 of 5 | ||||
| East River Energy | Named | 1 of 5 | ||||
| EisaiPublished as Eisai Logo | Named | 1 of 5 | ||||
| El Dorado Holdings | Named | 1 of 5 | ||||
| Foley, Baron, Metzger & Juip | Named | 1 of 5 | ||||
| Gershow Recycling | Named | 1 of 5 | ||||
| Goldman SachsPublished as Goldman Sachs & Co. | Named | 1 of 5 | ||||
| Named | 1 of 5 | |||||
| Greenwich Biosciences | Named | 1 of 5 | ||||
| Huffman & Huffman Brothers-In-Law | Named | 1 of 5 | ||||
| Impact HVAC | Named | 1 of 5 | ||||
| IpsenPublished as Ipsen Biopharmaceuticals, Inc. | Named | 1 of 5 | ||||
| Jim EllisPublished as Jim Ellis logo | Named | 1 of 5 | ||||
| Johnson & JohnsonPublished as Johnson & Johnson Family of Companies | Named | 1 of 5 | ||||
| Johnson SupplyPublished as Johnson HVAC Distribution | Our Supporters | 1 of 5 | ||||
| K Creative GroupPublished as Norie Knezetic/K Creative Group, Inc. | Named | 1 of 5 | ||||
| KS&R | Named | 1 of 5 | ||||
| Larimar Therapeutics | Core Program Sponsor | 1 of 5 | ||||
| Law Office of George J. Wall | Named | 1 of 5 | ||||
| Leon Max | Named | 1 of 5 | ||||
| Lexeo Therapeutics | Named | 1 of 5 | ||||
| Lindsay Hart | Named | 1 of 5 | ||||
| Mane Street Cigars & Lounge | Named | 1 of 5 | ||||
| McManus Lorey Funeral Home | Named | 1 of 5 | ||||
| Medford Fast Lube | Named | 1 of 5 | ||||
| Medtronic | Named | 1 of 5 | ||||
| Merz Therapeutics | Named | 1 of 5 | ||||
| Millennium Consultancy USA | Named | 1 of 5 | ||||
| Mossing Spas & More | Named | 1 of 5 | ||||
| Motric Bio | Named | 1 of 5 | ||||
| NAI DiLeo-Bram & Co. | Named | 1 of 5 | ||||
| Neuren PharmaceuticalsPublished as Neuren | Named | 1 of 5 | ||||
| NeuroCores | Friend Sponsors | 1 of 5 | ||||
| Neurocrine Biosciences | Named | 1 of 5 | ||||
| Neurogene | Diamond Sponsors | 1 of 5 | ||||
| Newron PharmaceuticalsPublished as Newron | Named | 1 of 5 | ||||
| Notis Professional Services | Named | 1 of 5 | ||||
| Novartis | Named | 1 of 5 | ||||
| ObiPublished as Obi Robot | Named | 1 of 5 | ||||
| OmniSource | Named | 1 of 5 | ||||
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 5 | ||||
| Pace Window and Door | Named | 1 of 5 | ||||
| Paramount, Inc. | Named | 1 of 5 | ||||
| PTC Therapeutics | Named | 1 of 5 | ||||
| Raymond James Financial | Named | 1 of 5 | ||||
| Revance Therapeutics | Named | 1 of 5 | ||||
| Rudi's Bar and Grill | Named | 1 of 5 | ||||
| Samsung | Named | 1 of 5 | ||||
| Satellite Advertising & Design | Named | 1 of 5 | ||||
| Servier | Named | 1 of 5 | ||||
| SH ExpressPublished as SH Express logo | Named | 1 of 5 | ||||
| Shumaker, Loop & Kendrick | Named | 1 of 5 | ||||
| Smartbox | Named | 1 of 5 | ||||
| Snap-onPublished as Snap-on Tools | Named | 1 of 5 | ||||
| Solid Biosciences | Named | 1 of 5 | ||||
| Southern Pine Timber Products | Named | 1 of 5 | ||||
| Sparkle Edge Cleaning Service | Named | 1 of 5 | ||||
| Stealth BioTherapeutics | Named | 1 of 5 | ||||
| Stellar Realty | Named | 1 of 5 | ||||
| Stifel Financial | Named | 1 of 5 | ||||
| Strickland's Steakhouse | Named | 1 of 5 | ||||
| Taysha Gene Therapies | Diamond Sponsors | 1 of 5 | ||||
| The H Group | Named | 1 of 5 | ||||
| The Hershey Company | Named | 1 of 5 | ||||
| Tobii Dynavox | Named | 1 of 5 | ||||
| Topsy Turvy Brewery | Named | 1 of 5 | ||||
| US Pharma Lab | Named | 1 of 5 | ||||
| Vanguard Protex Global | Named | 1 of 5 | ||||
| Vesta DesignPublished as Vesta Design/Josh Huskins | Named | 1 of 5 | ||||
| Vima Therapeutics | Named | 1 of 5 | ||||
| Voyager Therapeutics | Named | 1 of 5 | ||||
| Wagner's Market | Named | 1 of 5 | ||||
| Wakefern Food Corporation | Named | 1 of 5 | ||||
| Wegmans Food Markets | Named | 1 of 5 | ||||
| Wilspec Technologies | Named | 1 of 5 |
The outside view
A community that four mothers started in Southern California in 1974 and that has grown into the research and drug development infrastructure of a rare genetic disease, measuring its own progress at every step.
- Authority
- Build
- Outward
- Operational
Their shape
The Frontier
At home at the edge of what comes next.
The Frontier is restless and pioneering, always testing what comes next. Its gift is innovation and adaptability, its challenge is focus, and not leaving its longtime members behind.
Also reads toward The Movement and The Citadel.
Strengths
Not an official page of TSC Alliance. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.