Friedreich's Ataxia Research Alliance
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research, driving drug development and clinical trials, sustaining a global patient registry and natural history study, and empowering the worldwide FA community.
Financial profile
Friedreich's Ataxia Research Alliance · EIN 52-2122720 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $11,203,043 | $12,011,078 | $0 | $12,200,773 | $6,146,628 | Dec 2023 |
| FY2022 | $11,042,911 | $11,604,349 | $0 | $11,132,747 | $6,830,425 | Dec 2022 |
| FY2021 | $7,717,778 | $7,683,701 | $0 | $9,111,667 | $7,195,276 | Dec 2021 |
| FY2020 | $12,543,835 | $12,628,384 | $0 | $7,738,702 | $8,705,371 | Dec 2020 |
| FY2019 | $7,077,589 | $7,146,157 | $0 | $7,482,431 | $3,792,917 | Dec 2019 |
| FY2018 | $7,603,545 | $7,662,625 | $0 | $7,049,852 | $4,978,236 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Friedreich's Ataxia Research Alliance is read alongside.
MRA
Melanoma Research Alliance
The world's largest private nonprofit funder of melanoma research, structured so every donated dollar reaches…
140 companies named
LRA
Lupus Research Alliance
The largest nongovernment funder of lupus research, structured so that every donated dollar reaches the…
18 companies named
CPARF
Cerebral Palsy Alliance Research Foundation
A 501(c)(3) foundation accelerating scientific innovation for people with cerebral palsy and disability…
14 companies named
PERF
Pediatric Epilepsy Research Foundation
A foundation that funds collaborative, multicenter research and mentoring to advance the care of children…
RAN
Research Advocacy Network
A training force that turns patient advocates into full contributors to cancer research
Who backs FSARA
Every company Friedreich's Ataxia Research Alliance names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Amgen Rare Disease | Corporate partner | AAAAI AAFP AAN AAO AAPA +3 |
| Biogen* | Corporate partner | AAN AAO AAI AANEM ACNM +3 |
| Brown & Brown, Inc. | Foundation donor | ACEC ADAA BGACC CICA CLRCC +3 |
| Neurocrine Biosciences | Corporate partner | AMCP AAN AAPA AACE AANN +3 |
| Servier | Corporate partner | ASH ASPHO ASA BIO COA +1 |
| Alexion Pharmaceuticals | Corporate partner | AMCP CNS FAH MSV SHO |
| Arrowhead Pharmaceuticals | Corporate partner | PCNA |
| Biohaven Pharmaceuticals | Corporate partner | AES |
| Solid Biosciences | Corporate partner | ARM |
| Amalie Oil Company | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Big Timber Cattle Company, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Biologics by McKesson | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Columbia Food Service Co., Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Design Therapeutics | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Duncan Real Estate, Inc | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| El Dorado Holdings, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Foley, Baron, Metzger & Juip, PLLC | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Huffman & Huffman Brothers-In-Law, PLLC | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Larimar Therapeutics* | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Leon Max, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Lexeo Therapeutics | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Notis Professional Services | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| PTC Therapeutics | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Raymond James Financial, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Shumaker, Loop & Kendrick LLP | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Southern Pine Timber Products, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Stealth BioTherapeutics | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Stellar Realty, Inc. | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Vanguard Protex Global | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
| Voyager Therapeutics | Corporate partner | Only Friedreich's Ataxia Research Alliance, so far |
| Wilspec Technologies, Inc | Foundation donor | Only Friedreich's Ataxia Research Alliance, so far |
Sources: 2 published lists, read September 2026
2025 donors and contributors (FARA Annual Report 2026). Read September 27, 2026. Companies only from the donor list; tiers are dollar ranges. Individuals, families, foundations, estates, hospitals and nonprofits left out.
2025 industry sponsors (FARA Annual Report 2026). Read September 27, 2026. Biotech and pharma companies that contributed in 2025; asterisk marks Core Program Sponsors.
Who backs Friedreich's Ataxia Research Alliance's peers, but not Friedreich's Ataxia Research Alliance
Companies named publicly by at least one of Friedreich's Ataxia Research Alliance's five peer societies, and not found in Friedreich's Ataxia Research Alliance's reviewed public records.
The outside view
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research, driving drug development and clinical trials, sustaining a global patient registry and natural history study, and empowering the worldwide FA community.
- Consensus
- Build
- Outward
- Operational
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Village and The League.
Strengths
Not an official page of Friedreich's Ataxia Research Alliance. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.