LAM Foundation
A patient founded rally against a single rare disease
Financial profile
LAM Foundation · EIN 31-1438001 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $1,455,589 | $1,354,526 | $10,000 | $1,803,072 | $2,249,283 | Dec 2023 |
| FY2022 | $1,571,673 | $871,488 | $156,627 | $1,873,408 | $2,596,696 | Dec 2022 |
| FY2021 | $2,209,585 | $1,693,658 | $0 | $1,346,515 | $2,898,433 | Dec 2021 |
| FY2020 | $1,815,339 | $1,294,396 | $12,000 | $1,611,773 | $2,035,363 | Dec 2020 |
| FY2019 | $1,389,662 | $1,103,372 | $98,000 | $1,524,952 | $1,831,637 | Dec 2019 |
| FY2018 | $1,849,309 | $668,805 | $373,194 | $1,745,000 | $1,968,216 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies LAM Foundation is read alongside.
BSF
Barth Syndrome Foundation
A values driven St. Petersburg chamber that aims to be the preeminent leader of business while advocating…
4 companies named
DSF
Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research…
6 companies named
NF
Nephcure Foundation
A patient-founded force that turned a rare, misunderstood kidney disease into an organized cause with a…
9 companies named
AMDF
American Macular Degeneration Foundation
A patient centered foundation devoted entirely to macular degeneration, pairing plain spoken education and…
MSF
Moebius Syndrome Foundation
A rare disease foundation founded in 1994 that serves the Moebius syndrome community with connection…
Who backs LF
Every company LAM Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Aetna | Meeting sponsor | CCC GKCCC GRCC IFEBP JC +3 |
| David Vaughan Investments | Meeting sponsor | Only LAM Foundation, so far |
| Ozark Ready Mix | Meeting sponsor | Only LAM Foundation, so far |
Sources: 1 published list, read September 2026
2025 International LAM Research Conference & LAMposium sponsors. Read September 28, 2026. Conference and Breath of Hope Gala sponsors; logo-only tiers could not be named; individuals, hospitals, universities and nonprofits omitted.
Who backs LAM Foundation's peers, but not LAM Foundation
Companies named publicly by at least one of LAM Foundation's five peer societies, and not found in LAM Foundation's reviewed public records.
| Company | BSF | DSF | NF | Peers |
|---|---|---|---|---|
| anovo | Named | 1 of 3 | ||
| Astrazeneca-logo | Silver Sponsor | 1 of 3 | ||
| AZ_Alexion_FINAL-LOCKUP_RGB_Positive-3-Colour-003-1 | Silver Sponsor | 1 of 3 | ||
| biocodex logo | Named | 1 of 3 | ||
| Biogen-Blue-Logo-RGB-1920x1080-ddg | Silver Sponsor | 1 of 3 | ||
| Boehringer-Ingelheim-Logo-Light-Green | Platinum Sponsor | 1 of 3 | ||
| calliditas | Silver Sponsor | 1 of 3 | ||
| cyagen | Named | 1 of 3 | ||
| Eisai Logo | Named | 1 of 3 | ||
| Jazz Pharmaceuticals logo | Named | 1 of 3 | ||
| Jim Ellis logo | Named | 1 of 3 | ||
| Novartis-Logo-Warm-Black-3.2026 | Platinum Sponsor | 1 of 3 | ||
| pharmanovia | Named | 1 of 3 | ||
| SH Express logo | Named | 1 of 3 | ||
| Travere-Logo-CDTAC-2025 | Presenting Sponsor | 1 of 3 | ||
| UCB logo | Named | 1 of 3 | ||
| Vera-Logo-Color | Silver Sponsor | 1 of 3 | ||
| vertex-logo-current-partnership-page | Platinum Sponsor | 1 of 3 | ||
| XFOR | Named | 1 of 3 |
The outside view
A patient founded rally against a single rare disease
- Consensus
- Build
- Outward
- Operational
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Village and The Frontier.
Strengths
Not an official page of LAM Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.