Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research toward treatments and cures while supporting the affected children and families through grants, networks and advocacy.
Financial profile
Dravet Syndrome Foundation · EIN 27-0924627 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $3,257,096 | $2,530,133 | $471,472 | $2,163,052 | $6,914,736 | Dec 2023 |
| FY2022 | $2,515,782 | $1,713,227 | $662,596 | $2,028,839 | $5,760,774 | Dec 2022 |
| FY2021 | $2,186,012 | $1,437,446 | $693,507 | $1,265,323 | $5,326,604 | Dec 2021 |
| FY2020 | $1,964,117 | $1,228,571 | $654,981 | $921,735 | $4,385,466 | Dec 2020 |
| FY2019 | $2,030,205 | $1,609,408 | $379,531 | $1,162,133 | $3,341,498 | Dec 2019 |
| FY2018 | $2,016,366 | $1,459,444 | $511,463 | $1,042,361 | $2,484,573 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Dravet Syndrome Foundation is read alongside.
PERF
Pediatric Epilepsy Research Foundation
A foundation that funds collaborative, multicenter research and mentoring to advance the care of children…
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
MSF
Moebius Syndrome Foundation
A rare disease foundation founded in 1994 that serves the Moebius syndrome community with connection…
BSF
Barth Syndrome Foundation
A values driven St. Petersburg chamber that aims to be the preeminent leader of business while advocating…
4 companies named
SF
The Swifty Foundation
A foundation born from a teenager's dying wish, driving pediatric brain cancer research through tissue…
20 companies named
Who backs DSF
Every company Dravet Syndrome Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Eisai Logo | Education grant | AMCP AAFP AAN AAPA AASM +3 |
| Jazz Pharmaceuticals logo | Education grant | AASM ACNS ACC ACCP AES +3 |
| UCB logo | Education grant | AAD AAN AANEM AANN ACNS +3 |
| biocodex logo | Education grant | AES IDSA |
| Jim Ellis logo | Foundation donor | Only Dravet Syndrome Foundation, so far |
| SH Express logo | Foundation donor | Only Dravet Syndrome Foundation, so far |
Sources: 2 published lists, read September 2026
Our Supporters (partnerships page). Read September 28, 2026. Supporters giving $25,000 or more a year; only company logos recorded (families, family funds and fundraisers omitted).
Website educational grant partners (site footer). Read September 28, 2026. Companies thanked for educational grants that support the website.
Who backs Dravet Syndrome Foundation's peers, but not Dravet Syndrome Foundation
Companies named publicly by at least one of Dravet Syndrome Foundation's five peer societies, and not found in Dravet Syndrome Foundation's reviewed public records.
| Company | LF | BSF | SF | Peers |
|---|---|---|---|---|
| 3M | Community Suppporters | 1 of 3 | ||
| Aetna | History Room Sponsor | 1 of 3 | ||
| Alarm Detection Systems | Community Suppporters | 1 of 3 | ||
| Ameriprise | Community Suppporters | 1 of 3 | ||
| anovo | Named | 1 of 3 | ||
| AT&T | Community Suppporters | 1 of 3 | ||
| Bank of America | Community Suppporters | 1 of 3 | ||
| BB Golf LLC | Community Suppporters | 1 of 3 | ||
| Caterpillar | Community Suppporters | 1 of 3 | ||
| City National Bank | Community Suppporters | 1 of 3 | ||
| cyagen | Named | 1 of 3 | ||
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 3 | ||
| EMP Inc | Community Suppporters | 1 of 3 | ||
| Exelon | Community Suppporters | 1 of 3 | ||
| Heena Vital RX Inc | Community Suppporters | 1 of 3 | ||
| IMA Financial Group | Community Suppporters | 1 of 3 | ||
| KPMG | Community Suppporters | 1 of 3 | ||
| Law Office of Damon M. Fisch, P.C. | Community Suppporters | 1 of 3 | ||
| Meson Sabika | Community Suppporters | 1 of 3 | ||
| Michael D Krejci & Assoc LLC | Community Suppporters | 1 of 3 | ||
| Morningstar | Community Suppporters | 1 of 3 | ||
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 3 | ||
| pharmanovia | Named | 1 of 3 | ||
| Seven Bridges Eyecare | Community Suppporters | 1 of 3 | ||
| T- mobile | Community Suppporters | 1 of 3 | ||
| Total Quality Logistics | Community Suppporters | 1 of 3 | ||
| XFOR | Named | 1 of 3 |
The outside view
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research toward treatments and cures while supporting the affected children and families through grants, networks and advocacy.
- Consensus
- Build
- Outward
- Operational
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Frontier and The Village.
Strengths
Not an official page of Dravet Syndrome Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.