Pulmonary Fibrosis Foundation
The foundation two brothers started in 2000 after their sister died of idiopathic pulmonary fibrosis, grown into the trusted center of the PF and ILD world, setting the criteria for its care centers, keeping the registry, convening the largest conference on the disease and offering every program free, with no membership required.
Financial profile
Pulmonary Fibrosis Foundation · EIN 84-1558631 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $9,251,199 | $7,996,521 | $1,581,702 | $7,373,338 | $13,714,117 | Jun 2025 |
| FY2024 | $8,276,217 | $6,167,449 | $2,617,915 | $9,009,001 | $11,454,714 | Jun 2024 |
| FY2023 | $11,816,537 | $8,462,441 | $3,896,008 | $10,341,815 | $11,735,249 | Jun 2023 |
| FY2022 | $11,007,903 | $8,774,899 | $2,545,747 | $9,685,619 | $9,975,006 | Jun 2022 |
| FY2021 | $8,965,595 | $6,636,670 | $2,908,697 | $8,341,845 | $9,312,283 | Jun 2021 |
| FY2020 | $10,702,044 | $8,450,064 | $2,548,146 | $11,291,623 | $7,297,830 | Jun 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies PFF is read alongside.
PHA
Pulmonary Hypertension Association
A patient led force against a rare disease, ending isolation while pushing the science that might end the…
19 companies named
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
Sjögren's Foundation
Sjögren's Foundation
The foundation a newly diagnosed patient started from a Long Island support group in 1983, grown into the…
12 companies named
MGFA
Myasthenia Gravis Foundation of America
The foundation a mother started in 1952 when her teenage daughter was diagnosed with a rare disease that had…
18 companies named
A1F
Alpha-1 Foundation
The foundation three people living with Alpha-1 started in 1995 to pay for their own cure, grown into the…
14 companies named
Who backs PFF
Every company PFF names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| AbbVie | Corporate partner | AND AAD AAN AAO AAO +3 |
| Boehringer Ingelheim | Corporate partner | AAD AAFP AAO AAPA AAHA +3 |
| Bristol Myers Squibb | Corporate partner | AMCP ARM AAD AAN AAPMR +3 |
| Chiesi | Corporate partner | AARC ACAAI ACMGG APS ATS +3 |
| Genentech | Corporate partner | AMCP AcademyHealth AAAAI AAFP AAN +3 |
| Merck | Corporate partner | AcademyHealth AEE AAFP AAO AAP +3 |
| United Therapeutics | Corporate partner | AMCP ACCP ASE ATS GDCC +3 |
| Insmed | Corporate partner | ACCP ATS IDSA PHA Sjögren's Foundation |
| MannKind | Corporate partner | AND ASN ATS NASN |
| Liquidia | Meeting sponsor | ACCP ATS PHA |
| Avalyn PharmaPublished as Avalyn | Corporate partner | ACCP ATS |
| Brainomix | Exhibitor | ACCP RSNA |
| Celea Therapeutics | Corporate partner | ACCP ATS |
| AccredoPublished as Accredo by Evernorth | Corporate partner | PHA |
| Contineum Therapeutics | Corporate partner | ATS |
| Cumberland Pharmaceuticals | Exhibitor | IDSA |
| CVS Specialty | Corporate partner | PHA |
| Endeavor BioMedicines | Corporate partner | ACCP |
| Gossamer Bio | Corporate partner | PHA |
| Insilico Medicine | Corporate partner | ATS |
| Mediar TherapeuticsPublished as Mediar | Meeting sponsor | ACR |
| Pulmovant | Corporate partner | PHA |
| Trevi Therapeutics | Corporate partner | ACCP |
| Vicore Pharma | Corporate partner | ATS |
| Calluna Pharma | Exhibitor | Only PFF, so far |
| OrsiniPublished as Orsini Rare Disease Pharmacy Solutions | Corporate partner | Only PFF, so far |
| Rein Therapeutics | Corporate partner | Only PFF, so far |
| Rules-Based MedicinePublished as Rules-Based Medicine, an IQVIA business | Exhibitor | Only PFF, so far |
Sources: 6 published lists, read October 2026
2025 Exhibitors. Read October 7, 2026. Company exhibitors at PFF Summit 2025 in Chicago.
PFF Corporate Committee 2026 members. Read October 7, 2026. Company members of the 2026 PFF Corporate Committee, its industry forum.
PFF Registry: Thank you to our sponsors. Read October 7, 2026. Company sponsors of the PFF Registry.
PFF Summit Sponsors and Exhibitors. Read October 7, 2026. Company sponsors of PFF Summit 2025 in Chicago.
PFF Walk: Thank you to our sponsors!. Read October 7, 2026. National company sponsors of the 2026 PFF Walk series.
Thank you to our 2026 corporate partners. Read October 7, 2026. Companies the PFF names as its 2026 corporate partners.
Who backs PFF's peers, but not PFF
Companies named publicly by at least one of PFF's five peer societies, and not found in PFF's reviewed public records.
| Company | PHA | LF | Sjögren's Foundation | MGFA | A1F | Peers |
|---|---|---|---|---|---|---|
| Evernorth Health ServicesPublished as Evernorth Health Services (Accredo) | Strategic Partner | Supporting Partners | Gold Sponsors | 3 of 5 | ||
| Johnson & JohnsonPublished as JJ_Logo | Platinum | Gold Members | Presenting Partners | 3 of 5 | ||
| Novartis | Strategic Partner | Platinum Member | Collaborating Partners | 3 of 5 | ||
| Amgen | Gold Members | Presenting Partners | 2 of 5 | |||
| argenxPublished as argenx logo | Gold Members | Presenting Partners | 2 of 5 | |||
| Vor BioPublished as Vor Logo | Bronze Members | Supporting Partners | 2 of 5 | |||
| Advanced Aeromedical | Named | 1 of 5 | ||||
| Advanced Infusion Care | Gold Sponsors | 1 of 5 | ||||
| Aerovate | Peer Support | 1 of 5 | ||||
| Aetna | History Room Sponsor | 1 of 5 | ||||
| AIRNA | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| AlexionPublished as Alexion (logo) | Presenting Partners | 1 of 5 | ||||
| ArcellxPublished as Arcellx (logo) | Supporting Partners | 1 of 5 | ||||
| AvevoRX | Gold Sponsors | 1 of 5 | ||||
| Bayer | Bronze | 1 of 5 | ||||
| Beam Therapeutics | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| Cartesian TherapeuticsPublished as Cartesian (logo) | Collaborating Partners | 1 of 5 | ||||
| Catalyst PharmaceuticalsPublished as Catalyst Logo | Collaborating Partners | 1 of 5 | ||||
| Corsair Pharma | Member | 1 of 5 | ||||
| Cosette PharmaceuticalsPublished as Cosette Logo | Friend of the Foundation | 1 of 5 | ||||
| CSI Pharmacy | Gold Sponsors | 1 of 5 | ||||
| CSL | Platinum Sponsors | 1 of 5 | ||||
| Cullinan TherapeuticsPublished as Cullinan Logo | Bronze Members | 1 of 5 | ||||
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 5 | ||||
| Diagonal Therapeutics | Strategic Partner | 1 of 5 | ||||
| EMD SeronoPublished as EMD Serono (logo) | Supporting Partners | 1 of 5 | ||||
| Grifols | Platinum Sponsors | 1 of 5 | ||||
| Halo Biosciences | Member | 1 of 5 | ||||
| ImmunovantPublished as Immunovant (logo) | Supporting Partners | 1 of 5 | ||||
| InfuCareRxPublished as InfuCareRx (logo) | Supporting Partner | 1 of 5 | ||||
| Inhibikase Therapeutics | Strategic Partner | 1 of 5 | ||||
| Merck KGaAPublished as MERCK (logo), merckgroup.com | Collaborating Partners | 1 of 5 | ||||
| NMD PharmaPublished as NMD Pharma (logo) | Supporting Partners | 1 of 5 | ||||
| OtsukaPublished as Otsuka Logo | Silver Members | 1 of 5 | ||||
| OxiWear | Member | 1 of 5 | ||||
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 5 | ||||
| PAhR Therapeutics | Member | 1 of 5 | ||||
| Prime Medicine | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| RegeneronPublished as Regeneron (logo) | Supporting Partners | 1 of 5 | ||||
| Resolve TherapeuticsPublished as Resolve logo | Bronze Members | 1 of 5 | ||||
| Sanofi | Platinum Sponsors | 1 of 5 | ||||
| Takeda | Platinum Sponsors | 1 of 5 | ||||
| Tessera Therapeutics | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| UCBPublished as UCB (logo) | Collaborating Partners | 1 of 5 | ||||
| Vertex PharmaceuticalsPublished as Vertex (logo) | Supporting Partners | 1 of 5 | ||||
| Wave Life Sciences | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 |
The outside view
The foundation two brothers started in 2000 after their sister died of idiopathic pulmonary fibrosis, grown into the trusted center of the PF and ILD world, setting the criteria for its care centers, keeping the registry, convening the largest conference on the disease and offering every program free, with no membership required.
- Authority
- Build
- Outward
- Operational
Their shape
The Citadel
Led from the center, built to endure.
The Citadel runs on clarity and decisiveness, its direction held by a strong center the whole organization moves behind. Its gift is speed and coherence, its challenge is leaning too heavily on the few at the middle.
Also reads toward The Frontier and The Village.
Strengths
Not an official page of Pulmonary Fibrosis Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.