Sjögren's Foundation
The foundation a newly diagnosed patient started from a Long Island support group in 1983, grown into the body that tells medicine what Sjögren's is, down to its name, while still answering the questions of the person who has just been diagnosed.
Financial profile
Sjogrens Foundation Inc · EIN 11-2779073 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $5,277,586 | $4,712,138 | $502,889 | $4,223,979 | $4,027,388 | Jun 2025 |
| FY2024 | $3,497,666 | $2,964,863 | $442,631 | $3,174,412 | $2,912,197 | Jun 2024 |
| FY2023 | $3,324,713 | $2,756,148 | $489,669 | $2,841,846 | $2,565,723 | Jun 2023 |
| FY2022 | $2,943,480 | $2,391,109 | $514,416 | $2,322,444 | $2,070,542 | Jun 2022 |
| FY2021 | $2,961,602 | $2,505,185 | $427,253 | $2,930,916 | $1,563,999 | Jun 2021 |
| FY2020 | $2,468,773 | $2,004,952 | $391,049 | $2,427,639 | $1,441,172 | Jun 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Sjögren's Foundation is read alongside.
LRA
Lupus Research Alliance
The largest nongovernment funder of lupus research, structured so that every donated dollar reaches the…
18 companies named
CDF
Celiac Disease Foundation
A patient powered campaign to end a single disease, turning the people who live with celiac into the engine…
52 companies named
NF
Nephcure Foundation
A patient-founded force that turned a rare, misunderstood kidney disease into an organized cause with a…
9 companies named
MGFA
Myasthenia Gravis Foundation of America
The foundation a mother started in 1952 when her teenage daughter was diagnosed with a rare disease that had…
18 companies named
A1F
Alpha-1 Foundation
The foundation three people living with Alpha-1 started in 1995 to pay for their own cure, grown into the…
14 companies named
Who backs Sjögren's Foundation
Every company Sjögren's Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Amgen | Corporate member | AcademyHealth AAAAI AAFP AAN AAO +3 |
| argenxPublished as argenx logo | Corporate member | AAN AANEM ACR ANA ASA +3 |
| Boehringer IngelheimPublished as Boehringer Ingelheim Logo | Corporate member | AAD AAFP AAO AAPA AAHA +3 |
| Bristol Myers SquibbPublished as BMS logo | Corporate member | AMCP ARM AAD AAN AAPMR +3 |
| Johnson & JohnsonPublished as J&J Logo | Corporate member | AMCP AcademyHealth ACS AEE AAD +3 |
| NovartisPublished as Novartis Logo | Corporate member | ADLM AAD AAN AACR AANEM +3 |
| OtsukaPublished as Otsuka Logo | Corporate member | AAFP ACR ASCP ASN ASA +3 |
| InsmedPublished as insmed logo | Corporate member | ACCP ATS IDSA PHA |
| Cullinan TherapeuticsPublished as Cullinan Logo | Corporate member | ACR |
| Vor BioPublished as Vor Logo | Corporate member | MGFA |
| Cosette PharmaceuticalsPublished as Cosette Logo | Corporate member | Only Sjögren's Foundation, so far |
| Resolve TherapeuticsPublished as Resolve logo | Corporate member | Only Sjögren's Foundation, so far |
Sources: 2 published lists, read October 2026
2026 Virtual National Patient Conference sponsors. Read October 6, 2026. Sponsors of the 2026 Virtual National Patient Conference.
Our Corporate Members. Read October 6, 2026. Companies in the Sjögren's Foundation corporate member program, by membership level.
Who backs Sjögren's Foundation's peers, but not Sjögren's Foundation
Companies named publicly by at least one of Sjögren's Foundation's five peer societies, and not found in Sjögren's Foundation's reviewed public records.
| Company | LRA | CDF | NF | MGFA | A1F | Peers |
|---|---|---|---|---|---|---|
| AlexionPublished as AZ_Alexion_FINAL-LOCKUP_RGB_Positive-3-Colour-003-1 | Silver Sponsor | Presenting Partners | 2 of 5 | |||
| AstraZeneca | Corporate Leadership Circle | Silver Sponsor | 2 of 5 | |||
| Biogen | Corporate Leadership Circle | Silver Sponsor | 2 of 5 | |||
| EMD Serono | Corporate Leadership Circle | Supporting Partners | 2 of 5 | |||
| Evernorth Health ServicesPublished as Evernorth Health Services (logo) | Supporting Partners | Gold Sponsors | 2 of 5 | |||
| Pfizer | Corporate Leadership Circle | Named | 2 of 5 | |||
| SanofiPublished as 211125-sanofi-logo-rgb | Named | Platinum Sponsors | 2 of 5 | |||
| Takeda | Named | Platinum Sponsors | 2 of 5 | |||
| UCB | Corporate Leadership Circle | Collaborating Partners | 2 of 5 | |||
| 9 Meters BiopharmaPublished as Logo_9-Meters-Biopharma_CMYK-1 | Named | 1 of 5 | ||||
| Adaptive BiotechnologiesPublished as adaptive-logo | Named | 1 of 5 | ||||
| Adelphi Real WorldPublished as Adelphi-logo-3.23.24 | Named | 1 of 5 | ||||
| Advanced Aeromedical | Named | 1 of 5 | ||||
| Advanced Infusion Care | Gold Sponsors | 1 of 5 | ||||
| AIRNA | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| Allena PharmaceuticalsPublished as Allena | Named | 1 of 5 | ||||
| Anaheim Clinical Trials | Named | 1 of 5 | ||||
| Analysis GroupPublished as Analysis-Group-1536x360-1 | Named | 1 of 5 | ||||
| AnokionPublished as Anokion_Logo_3-color_RGB | Named | 1 of 5 | ||||
| ArcellxPublished as Arcellx (logo) | Supporting Partners | 1 of 5 | ||||
| ArdelyxPublished as Ardelyx-Logo-RGB-2.13.26 | Named | 1 of 5 | ||||
| Aurinia | Corporate Leadership Circle | 1 of 5 | ||||
| AvevoRX | Gold Sponsors | 1 of 5 | ||||
| Avrok BioPublished as High-Resolution-Avrok-Bio-Logo | Named | 1 of 5 | ||||
| Barinthus BioPublished as Barinthus-Logo-Full-Color-rgb | Named | 1 of 5 | ||||
| Beam Therapeutics | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| Cabaletta Bio | Corporate Leadership Circle | 1 of 5 | ||||
| Calliditas | Silver Sponsor | 1 of 5 | ||||
| Caputo FlourPublished as Caputo-Flour-Logo | Named | 1 of 5 | ||||
| Cartesian TherapeuticsPublished as Cartesian (logo) | Collaborating Partners | 1 of 5 | ||||
| Catalyst PharmaceuticalsPublished as Catalyst Logo | Collaborating Partners | 1 of 5 | ||||
| Celgene | Named | 1 of 5 | ||||
| Celiac CruisePublished as CELIAC-CRUISE-transparent | Named | 1 of 5 | ||||
| Celimmune | Named | 1 of 5 | ||||
| CheeriosPublished as Sponsor-Logo-Template-cheerios | Named | 1 of 5 | ||||
| ChexPublished as chex.com (logo link) | Named | 1 of 5 | ||||
| Chugai PharmaceuticalPublished as Chugai | Named | 1 of 5 | ||||
| Clinical Trial Media | Named | 1 of 5 | ||||
| CrunchmasterPublished as Sponsor-Logo-Template-crunchmaster-2 | Named | 1 of 5 | ||||
| CSI Pharmacy | Gold Sponsors | 1 of 5 | ||||
| CSL | Platinum Sponsors | 1 of 5 | ||||
| Dr. SchärPublished as Sponsor-Logo-Template-Schar | Named | 1 of 5 | ||||
| Eat SmartPublished as Sponsor-Logo-Template-eat-smart | Named | 1 of 5 | ||||
| Genentech | Named | 1 of 5 | ||||
| General MillsPublished as General-Mills-logo | Named | 1 of 5 | ||||
| Global Perspectives | Named | 1 of 5 | ||||
| Greenphire | Named | 1 of 5 | ||||
| Grifols | Platinum Sponsors | 1 of 5 | ||||
| GSK | Corporate Leadership Circle | 1 of 5 | ||||
| Horizon Pharma | Corporate Leadership Circle | 1 of 5 | ||||
| ICON | Named | 1 of 5 | ||||
| ImmundiagnostikPublished as Immundiagnostik-Logo | Named | 1 of 5 | ||||
| ImmunogenXPublished as Immunogenx-logo2016trans | Named | 1 of 5 | ||||
| ImmunosanTPublished as immusanT | Named | 1 of 5 | ||||
| ImmunovantPublished as Immunovant (logo) | Supporting Partners | 1 of 5 | ||||
| InfuCareRxPublished as InfuCareRx (logo) | Supporting Partner | 1 of 5 | ||||
| Janssen | Corporate Leadership Circle | 1 of 5 | ||||
| Jones Dairy FarmPublished as Jones-Dairy-Farm-Logo-2025 | Named | 1 of 5 | ||||
| King Arthur BakingPublished as Sponsor-Logo-Template-King-Arthur | Named | 1 of 5 | ||||
| LancePublished as Sponsor-Logo-Template-lance-2 | Named | 1 of 5 | ||||
| Leapcure | Named | 1 of 5 | ||||
| Lilly | Corporate Leadership Circle | 1 of 5 | ||||
| Lupus News Today | Named | 1 of 5 | ||||
| Mark Cuban Cost Plus Drug CompanyPublished as MCC (costplusdrugs.com) | Named | 1 of 5 | ||||
| MedpacePublished as Medpace_FullColor | Named | 1 of 5 | ||||
| Merck KGaAPublished as MERCK (logo), merckgroup.com | Collaborating Partners | 1 of 5 | ||||
| MJH Life SciencesPublished as MJH | Named | 1 of 5 | ||||
| Nairn'sPublished as Sponsor-Logo-Template-nairns | Named | 1 of 5 | ||||
| Nature ValleyPublished as Sponsor-Logo-Template-nature-valley | Named | 1 of 5 | ||||
| NMD PharmaPublished as NMD Pharma (logo) | Supporting Partners | 1 of 5 | ||||
| Oxford PharmaGenesisPublished as Oxford-PharmaGenesis-2 | Named | 1 of 5 | ||||
| ParexelPublished as paraxel-logo | Named | 1 of 5 | ||||
| Parvus TherapeuticsPublished as parvus-logo | Named | 1 of 5 | ||||
| Prime Medicine | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| Provention BioPublished as Provention_Bio_Logo | Named | 1 of 5 | ||||
| PvP Biologics | Named | 1 of 5 | ||||
| RegeneronPublished as Regeneron (logo) | Supporting Partners | 1 of 5 | ||||
| RheumLive | Named | 1 of 5 | ||||
| Sanguine BiosciencesPublished as actualsanguinelogo | Named | 1 of 5 | ||||
| Snyder's of HanoverPublished as Sponsor-Logo-Template-2-snyders-2 | Named | 1 of 5 | ||||
| Snyder's-LancePublished as Sponsor-Logo-Template-snyders-lance | Named | 1 of 5 | ||||
| TaiwanJ Pharmaceuticals | Named | 1 of 5 | ||||
| Tessera Therapeutics | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| TevaPublished as teva-logo-2 | Named | 1 of 5 | ||||
| Travere TherapeuticsPublished as Travere-Logo-CDTAC-2025 | Presenting Sponsor | 1 of 5 | ||||
| uMotif | Named | 1 of 5 | ||||
| Vera TherapeuticsPublished as Vera-Logo-Color | Silver Sponsor | 1 of 5 | ||||
| VertexPublished as vertex-logo-current-partnership-page | Platinum Sponsor | 1 of 5 | ||||
| Vertex PharmaceuticalsPublished as Vertex (logo) | Supporting Partners | 1 of 5 | ||||
| WasaPublished as Sponsor-Logo-Template-Wasa | Named | 1 of 5 | ||||
| Wave Life Sciences | Emerging Therapies in Alpha 1 Sponsors | 1 of 5 | ||||
| WCBS | Named | 1 of 5 |
The outside view
The foundation a newly diagnosed patient started from a Long Island support group in 1983, grown into the body that tells medicine what Sjögren's is, down to its name, while still answering the questions of the person who has just been diagnosed.
- Authority
- Build
- Outward
- Operational
Their shape
The Citadel
Led from the center, built to endure.
The Citadel runs on clarity and decisiveness, its direction held by a strong center the whole organization moves behind. Its gift is speed and coherence, its challenge is leaning too heavily on the few at the middle.
Also reads toward The Movement and The Village.
Strengths
Not an official page of Sjögren's Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.