Pulmonary Hypertension Association
A patient led force against a rare disease, ending isolation while pushing the science that might end the disease.
Financial profile
Pulmonary Hypertension Association · EIN 65-0880021 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $7,853,357 | $5,889,956 | $1,211,062 | $7,471,678 | $20,901,938 | Dec 2023 |
| FY2022 | $6,298,792 | $5,262,655 | $381,538 | $6,357,695 | $19,034,057 | Dec 2022 |
| FY2021 | $6,905,835 | $5,533,494 | $366,985 | $5,251,835 | $21,676,688 | Dec 2021 |
| FY2020 | $4,744,900 | $3,899,433 | $354,755 | $4,785,935 | $19,243,680 | Dec 2020 |
| FY2019 | $7,865,980 | $6,604,447 | $690,313 | $6,116,064 | $18,497,253 | Dec 2019 |
| FY2018 | $7,024,047 | $5,376,201 | $1,101,735 | $7,471,134 | $15,515,891 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Pulmonary Hypertension Association is read alongside.
FSARA
Friedreich's Ataxia Research Alliance
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research…
31 companies named
BDSRA
Batten Disease Support and Research Association
A family founded organization that turns the experience of a rare fatal childhood disease into funded…
DSF
Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research…
6 companies named
LRA
Lupus Research Alliance
The largest nongovernment funder of lupus research, structured so that every donated dollar reaches the…
18 companies named
MRA
Melanoma Research Alliance
The world's largest private nonprofit funder of melanoma research, structured so every donated dollar reaches…
140 companies named
Who backs PHA
Every company Pulmonary Hypertension Association names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Bayer | Corporate partner | AMCP AAAAI AAFP AAN AAPA +3 |
| JJ_Logo | Corporate partner | AMCP ACS AAD AAFP AAN +3 |
| Merck | Corporate partner | AAFP AAO AAP AAPA AAM +3 |
| Novartis | Corporate member | AAD AAN AACR AANEM ACS +3 |
| Updated-UT-logo | Corporate partner | AMCP ACCP ASE ATS GDCC +3 |
| Insmed | Corporate member | ACCP ATS IDSA |
| Evernorth Health Services (Accredo) | Corporate member | IFEBP SIIA |
| Liquidia | Corporate partner | ACCP ATS |
| Accredo | Corporate partner | Only Pulmonary Hypertension Association, so far |
| Aerovate | Other | Only Pulmonary Hypertension Association, so far |
| Corsair Pharma | Corporate member | Only Pulmonary Hypertension Association, so far |
| CVS-Specialty | Corporate partner | Only Pulmonary Hypertension Association, so far |
| Diagonal Therapeutics | Corporate member | Only Pulmonary Hypertension Association, so far |
| GOSSAMER-LOGO | Corporate partner | Only Pulmonary Hypertension Association, so far |
| Halo Biosciences | Corporate member | Only Pulmonary Hypertension Association, so far |
| Inhibikase Therapeutics | Corporate member | Only Pulmonary Hypertension Association, so far |
| OxiWear | Corporate member | Only Pulmonary Hypertension Association, so far |
| PAhR Therapeutics | Corporate member | Only Pulmonary Hypertension Association, so far |
| Pulmovant | Corporate member | Only Pulmonary Hypertension Association, so far |
Sources: 3 published lists, read September 2026
2026 Corporate Committee. Read September 28, 2026.
Industry Sponsors. Read September 28, 2026. Tiered industry sponsor logo wall; year not stated. Names read from logo image file names.
Program sponsors. Read September 28, 2026. Sponsors listed per PHA program; tier field holds the program name. Year not stated.
Who backs Pulmonary Hypertension Association's peers, but not Pulmonary Hypertension Association
Companies named publicly by at least one of Pulmonary Hypertension Association's five peer societies, and not found in Pulmonary Hypertension Association's reviewed public records.
The outside view
A patient led force against a rare disease, ending isolation while pushing the science that might end the disease.
- Consensus
- Build
- Outward
- Operational
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Village and The Republic.
Strengths
Not an official page of Pulmonary Hypertension Association. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.