National Scleroderma Foundation
The patient advocacy organization for scleroderma, founded in 1998, that funds peer reviewed research toward a cure while volunteers who live with the disease lead the support groups that carry people through it.
Financial profile
National Scleroderma Foundation · EIN 52-1375827 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $6,628,652 | $5,597,175 | $0 | $6,783,274 | $8,332,615 | Jun 2025 |
| FY2024 | $4,941,722 | $3,912,611 | $0 | $6,956,852 | $8,353,197 | Jun 2024 |
| FY2023 | $6,915,898 | $6,057,608 | $0 | $6,461,742 | $9,811,236 | Jun 2023 |
| FY2022 | $4,581,467 | $4,462,430 | $0 | $6,210,712 | $8,549,621 | Jun 2022 |
| FY2021 | $4,188,631 | $3,976,045 | $0 | $4,468,676 | $11,398,690 | Jun 2021 |
| FY2020 | $3,811,707 | $3,405,450 | $128,846 | $5,012,061 | $9,514,379 | Jun 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies National Scleroderma Foundation is read alongside.
Sjögren's Foundation
Sjögren's Foundation
The foundation a newly diagnosed patient started from a Long Island support group in 1983, grown into the…
12 companies named
LRA
Lupus Research Alliance
The largest nongovernment funder of lupus research, structured so that every donated dollar reaches the…
18 companies named
PFF
Pulmonary Fibrosis Foundation
The foundation two brothers started in 2000 after their sister died of idiopathic pulmonary fibrosis, grown…
28 companies named
PHA
Pulmonary Hypertension Association
A patient led force against a rare disease, ending isolation while pushing the science that might end the…
19 companies named
MGFA
Myasthenia Gravis Foundation of America
The foundation a mother started in 1952 when her teenage daughter was diagnosed with a rare disease that had…
18 companies named
Who backs National Scleroderma Foundation
Every company National Scleroderma Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| AbbVie | Meeting sponsor | AND AAD AAN AAO AAO +3 |
| argenx | Corporate partner | AAN AANEM ACR ANA ASA +3 |
| AstraZeneca | Corporate partner | AMCP AAAAI AAFP AAN AAPA +3 |
| Boehringer Ingelheim | Corporate partner | AAD AAFP AAO AAPA AAHA +3 |
| Bristol Myers Squibb | Corporate partner | AMCP ARM AAD AAN AAPMR +3 |
| Merck | Corporate partner | AcademyHealth AEE AAFP AAO AAP +3 |
| Novartis | Corporate partner | ADLM AAD AAN AACR AANEM +3 |
| United Therapeutics | Corporate partner | AMCP ACCP ASE ATS GDCC +3 |
| Mediar Therapeutics | Corporate partner | ACR PFF |
| Nkarta | Corporate partner | ACR |
| Adicet Bio | Corporate partner | Only National Scleroderma Foundation, so far |
Sources: 3 published lists, read October 2026
2026 National Scleroderma Conference Sponsors. Read October 8, 2026. Sponsors of the 2026 National Scleroderma Conference.
Our Partners. Read October 8, 2026. Corporate donors recognized by the National Scleroderma Foundation.
Scleroderma Research Grant Program supporters. Read October 8, 2026. Companies supporting the peer reviewed research grant program.
Who backs National Scleroderma Foundation's peers, but not National Scleroderma Foundation
Companies named publicly by at least one of National Scleroderma Foundation's five peer societies, and not found in National Scleroderma Foundation's reviewed public records.
| Company | Sjögren's Foundation | LRA | PFF | PHA | MGFA | Peers |
|---|---|---|---|---|---|---|
| Amgen | Gold Members | Corporate Leadership Circle | Presenting Partners | 3 of 5 | ||
| InsmedPublished as insmed logo | Bronze Members | Gold | Strategic Partner | 3 of 5 | ||
| Johnson & JohnsonPublished as J&J Logo | Gold Members | Platinum | Presenting Partners | 3 of 5 | ||
| AccredoPublished as Accredo by Evernorth | National Silver | Bronze | 2 of 5 | |||
| CVS Specialty | National Gold | Bronze | 2 of 5 | |||
| EMD Serono | Corporate Leadership Circle | Supporting Partners | 2 of 5 | |||
| Evernorth Health ServicesPublished as Evernorth Health Services (Accredo) | Strategic Partner | Supporting Partners | 2 of 5 | |||
| Genentech | Named | Founding Partner | 2 of 5 | |||
| Gossamer Bio | Silver | Gold | 2 of 5 | |||
| Liquidia | National Gold | Gold | 2 of 5 | |||
| Pulmovant | Named | Corporate Champion | 2 of 5 | |||
| UCB | Corporate Leadership Circle | Collaborating Partners | 2 of 5 | |||
| Vor BioPublished as Vor Logo | Bronze Members | Supporting Partners | 2 of 5 | |||
| Aerovate | Peer Support | 1 of 5 | ||||
| AlexionPublished as Alexion (logo) | Presenting Partners | 1 of 5 | ||||
| ArcellxPublished as Arcellx (logo) | Supporting Partners | 1 of 5 | ||||
| Aurinia | Corporate Leadership Circle | 1 of 5 | ||||
| Avalyn PharmaPublished as Avalyn | Gold | 1 of 5 | ||||
| Bayer | Bronze | 1 of 5 | ||||
| Biogen | Corporate Leadership Circle | 1 of 5 | ||||
| Brainomix | Named | 1 of 5 | ||||
| Cabaletta Bio | Corporate Leadership Circle | 1 of 5 | ||||
| Calluna Pharma | Named | 1 of 5 | ||||
| Cartesian TherapeuticsPublished as Cartesian (logo) | Collaborating Partners | 1 of 5 | ||||
| Catalyst PharmaceuticalsPublished as Catalyst Logo | Collaborating Partners | 1 of 5 | ||||
| Celea Therapeutics | Named | 1 of 5 | ||||
| Chiesi | Developing Partner | 1 of 5 | ||||
| Contineum Therapeutics | Named | 1 of 5 | ||||
| Corsair Pharma | Member | 1 of 5 | ||||
| Cosette PharmaceuticalsPublished as Cosette Logo | Friend of the Foundation | 1 of 5 | ||||
| Cullinan TherapeuticsPublished as Cullinan Logo | Bronze Members | 1 of 5 | ||||
| Cumberland Pharmaceuticals | Named | 1 of 5 | ||||
| Diagonal Therapeutics | Strategic Partner | 1 of 5 | ||||
| Endeavor BioMedicines | National Bronze | 1 of 5 | ||||
| GSK | Corporate Leadership Circle | 1 of 5 | ||||
| Halo Biosciences | Member | 1 of 5 | ||||
| Horizon Pharma | Corporate Leadership Circle | 1 of 5 | ||||
| ImmunovantPublished as Immunovant (logo) | Supporting Partners | 1 of 5 | ||||
| InfuCareRxPublished as InfuCareRx (logo) | Supporting Partner | 1 of 5 | ||||
| Inhibikase Therapeutics | Strategic Partner | 1 of 5 | ||||
| Insilico Medicine | Named | 1 of 5 | ||||
| Janssen | Corporate Leadership Circle | 1 of 5 | ||||
| Lilly | Corporate Leadership Circle | 1 of 5 | ||||
| Lupus News Today | Named | 1 of 5 | ||||
| MannKind | Silver | 1 of 5 | ||||
| Merck KGaAPublished as MERCK (logo), merckgroup.com | Collaborating Partners | 1 of 5 | ||||
| MJH Life SciencesPublished as MJH | Named | 1 of 5 | ||||
| NMD PharmaPublished as NMD Pharma (logo) | Supporting Partners | 1 of 5 | ||||
| OrsiniPublished as Orsini Rare Disease Pharmacy Solutions | Named | 1 of 5 | ||||
| OtsukaPublished as Otsuka Logo | Silver Members | 1 of 5 | ||||
| OxiWear | Member | 1 of 5 | ||||
| PAhR Therapeutics | Member | 1 of 5 | ||||
| Pfizer | Corporate Leadership Circle | 1 of 5 | ||||
| RegeneronPublished as Regeneron (logo) | Supporting Partners | 1 of 5 | ||||
| Rein Therapeutics | Named | 1 of 5 | ||||
| Resolve TherapeuticsPublished as Resolve logo | Bronze Members | 1 of 5 | ||||
| RheumLive | Named | 1 of 5 | ||||
| Rules-Based MedicinePublished as Rules-Based Medicine, an IQVIA business | Named | 1 of 5 | ||||
| Trevi Therapeutics | Silver | 1 of 5 | ||||
| Vertex PharmaceuticalsPublished as Vertex (logo) | Supporting Partners | 1 of 5 | ||||
| Vicore Pharma | Silver | 1 of 5 | ||||
| WCBS | Named | 1 of 5 |
The outside view
The patient advocacy organization for scleroderma, founded in 1998, that funds peer reviewed research toward a cure while volunteers who live with the disease lead the support groups that carry people through it.
- Consensus
- Build
- Outward
- Volunteer
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Village and The Frontier.
Strengths
Not an official page of National Scleroderma Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.