Moebius Syndrome Foundation
A rare disease foundation founded in 1994 that serves the Moebius syndrome community with connection, scholarships, symposiums, and more than a million dollars in research funding.
Financial profile
Moebius Syndrome Foundation · EIN 13-3753992 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $458,300 | $322,045 | $66,366 | $599,259 | $1,830,486 | Dec 2023 |
| FY2022 | $358,125 | $240,979 | $69,422 | $519,527 | $1,853,173 | Dec 2022 |
| FY2021 | $1,037,936 | $988,888 | $0 | $183,742 | $2,322,833 | Dec 2021 |
| FY2020 | $104,435 | $66,325 | $0 | $600,241 | $1,415,616 | Dec 2020 |
| FY2019 | $232,434 | $182,833 | $4,848 | $321,314 | $1,823,982 | Dec 2019 |
| FY2018 | $331,391 | $180,300 | $107,497 | $414,749 | $1,774,385 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Moebius Syndrome Foundation is read alongside.
DSF
Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research…
6 companies named
BSF
Barth Syndrome Foundation
A values driven St. Petersburg chamber that aims to be the preeminent leader of business while advocating…
4 companies named
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
AMDF
American Macular Degeneration Foundation
A patient centered foundation devoted entirely to macular degeneration, pairing plain spoken education and…
SF
The Swifty Foundation
A foundation born from a teenager's dying wish, driving pediatric brain cancer research through tissue…
20 companies named
Who backs MSF
No public supporter list found as of September 2026.
Who backs Moebius Syndrome Foundation's peers, but not Moebius Syndrome Foundation
Companies named publicly by at least one of Moebius Syndrome Foundation's five peer societies, and not found in Moebius Syndrome Foundation's reviewed public records.
| Company | DSF | BSF | LF | SF | Peers |
|---|---|---|---|---|---|
| 3M | Community Suppporters | 1 of 4 | |||
| Aetna | History Room Sponsor | 1 of 4 | |||
| Alarm Detection Systems | Community Suppporters | 1 of 4 | |||
| Ameriprise | Community Suppporters | 1 of 4 | |||
| anovo | Named | 1 of 4 | |||
| AT&T | Community Suppporters | 1 of 4 | |||
| Bank of America | Community Suppporters | 1 of 4 | |||
| BB Golf LLC | Community Suppporters | 1 of 4 | |||
| biocodex logo | Named | 1 of 4 | |||
| Caterpillar | Community Suppporters | 1 of 4 | |||
| City National Bank | Community Suppporters | 1 of 4 | |||
| cyagen | Named | 1 of 4 | |||
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 4 | |||
| Eisai Logo | Named | 1 of 4 | |||
| EMP Inc | Community Suppporters | 1 of 4 | |||
| Exelon | Community Suppporters | 1 of 4 | |||
| Heena Vital RX Inc | Community Suppporters | 1 of 4 | |||
| IMA Financial Group | Community Suppporters | 1 of 4 | |||
| Jazz Pharmaceuticals logo | Named | 1 of 4 | |||
| Jim Ellis logo | Named | 1 of 4 | |||
| KPMG | Community Suppporters | 1 of 4 | |||
| Law Office of Damon M. Fisch, P.C. | Community Suppporters | 1 of 4 | |||
| Meson Sabika | Community Suppporters | 1 of 4 | |||
| Michael D Krejci & Assoc LLC | Community Suppporters | 1 of 4 | |||
| Morningstar | Community Suppporters | 1 of 4 | |||
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 4 | |||
| pharmanovia | Named | 1 of 4 | |||
| Seven Bridges Eyecare | Community Suppporters | 1 of 4 | |||
| SH Express logo | Named | 1 of 4 | |||
| T- mobile | Community Suppporters | 1 of 4 | |||
| Total Quality Logistics | Community Suppporters | 1 of 4 | |||
| UCB logo | Named | 1 of 4 | |||
| XFOR | Named | 1 of 4 |
The outside view
A rare disease foundation founded in 1994 that serves the Moebius syndrome community with connection, scholarships, symposiums, and more than a million dollars in research funding.
- Consensus
- Build
- Outward
- Volunteer
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Village and The Frontier.
Strengths
Not an official page of Moebius Syndrome Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.