Barth Syndrome Foundation
A values driven St. Petersburg chamber that aims to be the preeminent leader of business while advocating across every level of government and cultivating young professionals and new ventures.
Financial profile
Barth Syndrome Foundation · EIN 22-3755704 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $1,334,806 | $1,228,396 | $0 | $1,421,717 | $5,285,354 | Dec 2023 |
| FY2022 | $1,387,712 | $1,397,138 | $0 | $1,367,327 | $5,013,330 | Dec 2022 |
| FY2021 | $1,563,641 | $1,214,336 | $0 | $1,010,732 | $5,701,689 | Dec 2021 |
| FY2020 | $1,267,165 | $1,162,206 | $0 | $1,001,933 | $5,280,639 | Dec 2020 |
| FY2019 | $1,135,762 | $935,649 | $0 | $1,301,376 | $4,706,418 | Dec 2019 |
| FY2018 | $2,291,095 | $1,997,067 | $156,766 | $1,155,310 | $4,591,271 | Dec 2018 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Barth Syndrome Foundation is read alongside.
DSF
Dravet Syndrome Foundation
A foundation that aggressively raises funds for Dravet syndrome and related epilepsies, funding research…
6 companies named
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
MSF
Moebius Syndrome Foundation
A rare disease foundation founded in 1994 that serves the Moebius syndrome community with connection…
AMDF
American Macular Degeneration Foundation
A patient centered foundation devoted entirely to macular degeneration, pairing plain spoken education and…
SF
The Swifty Foundation
A foundation born from a teenager's dying wish, driving pediatric brain cancer research through tissue…
20 companies named
Who backs BSF
Every company Barth Syndrome Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| anovo | Meeting sponsor | Only Barth Syndrome Foundation, so far |
| cyagen | Meeting sponsor | Only Barth Syndrome Foundation, so far |
| pharmanovia | Meeting sponsor | Only Barth Syndrome Foundation, so far |
| XFOR | Meeting sponsor | Only Barth Syndrome Foundation, so far |
Sources: 1 published list, read September 2026
2026 Barth Syndrome International Conference sponsors. Read September 28, 2026. Conference sponsor logos, identified from image file names; one logo (Mighty) not identifiable and omitted.
Who backs Barth Syndrome Foundation's peers, but not Barth Syndrome Foundation
Companies named publicly by at least one of Barth Syndrome Foundation's five peer societies, and not found in Barth Syndrome Foundation's reviewed public records.
| Company | DSF | LF | SF | Peers |
|---|---|---|---|---|
| 3M | Community Suppporters | 1 of 3 | ||
| Aetna | History Room Sponsor | 1 of 3 | ||
| Alarm Detection Systems | Community Suppporters | 1 of 3 | ||
| Ameriprise | Community Suppporters | 1 of 3 | ||
| AT&T | Community Suppporters | 1 of 3 | ||
| Bank of America | Community Suppporters | 1 of 3 | ||
| BB Golf LLC | Community Suppporters | 1 of 3 | ||
| biocodex logo | Named | 1 of 3 | ||
| Caterpillar | Community Suppporters | 1 of 3 | ||
| City National Bank | Community Suppporters | 1 of 3 | ||
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 3 | ||
| Eisai Logo | Named | 1 of 3 | ||
| EMP Inc | Community Suppporters | 1 of 3 | ||
| Exelon | Community Suppporters | 1 of 3 | ||
| Heena Vital RX Inc | Community Suppporters | 1 of 3 | ||
| IMA Financial Group | Community Suppporters | 1 of 3 | ||
| Jazz Pharmaceuticals logo | Named | 1 of 3 | ||
| Jim Ellis logo | Named | 1 of 3 | ||
| KPMG | Community Suppporters | 1 of 3 | ||
| Law Office of Damon M. Fisch, P.C. | Community Suppporters | 1 of 3 | ||
| Meson Sabika | Community Suppporters | 1 of 3 | ||
| Michael D Krejci & Assoc LLC | Community Suppporters | 1 of 3 | ||
| Morningstar | Community Suppporters | 1 of 3 | ||
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 3 | ||
| Seven Bridges Eyecare | Community Suppporters | 1 of 3 | ||
| SH Express logo | Named | 1 of 3 | ||
| T- mobile | Community Suppporters | 1 of 3 | ||
| Total Quality Logistics | Community Suppporters | 1 of 3 | ||
| UCB logo | Named | 1 of 3 |
The outside view
A values driven St. Petersburg chamber that aims to be the preeminent leader of business while advocating across every level of government and cultivating young professionals and new ventures.
- Consensus
- Build
- Outward
- Operational
Their shape
The Republic
Run by its members, built to outlast them.
The Republic runs like a well-built institution, professional and stable, under the guidance of its members. Its gift is scale and continuity, its challenge is staying close to the grassroots as it grows.
Also reads toward The Movement, The Village and The League.
Strengths
Not an official page of Barth Syndrome Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.