Hydrocephalus Association
A parent support group that began at UCSF in 1983 and grew into the largest nonprofit, nongovernmental funder of hydrocephalus research in the United States, still built around the families who live with the condition.
Financial profile
Hydrocephalus Association Incorporated · EIN 94-3000301 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2025 | $4,383,244 | $4,277,866 | $0 | $3,784,832 | $3,528,164 | Dec 2025 |
| FY2024 | $3,558,664 | $3,350,909 | $73,155 | $4,411,991 | $2,969,822 | Dec 2024 |
| FY2023 | $3,628,383 | $3,520,084 | $0 | $3,629,656 | $3,746,780 | Dec 2023 |
| FY2022 | $4,148,543 | $4,244,362 | $0 | $3,617,494 | $3,664,249 | Dec 2022 |
| FY2021 | $3,909,969 | $4,003,140 | $0 | $2,745,199 | $3,252,729 | Dec 2021 |
| FY2020 | $3,247,779 | $3,399,671 | $13,090 | $3,139,397 | $2,084,587 | Dec 2020 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies HA is read alongside.
BDSRA
Batten Disease Support and Research Association
A family founded organization that turns the experience of a rare fatal childhood disease into funded…
FSARA
Friedreich's Ataxia Research Alliance
A patient-founded nonprofit dedicated to curing Friedreich's ataxia by funding peer-reviewed research…
31 companies named
CPARF
Cerebral Palsy Alliance Research Foundation
A 501(c)(3) foundation accelerating scientific innovation for people with cerebral palsy and disability…
14 companies named
MGFA
Myasthenia Gravis Foundation of America
The foundation a mother started in 1952 when her teenage daughter was diagnosed with a rare disease that had…
18 companies named
Sjögren's Foundation
Sjögren's Foundation
The foundation a newly diagnosed patient started from a Long Island support group in 1983, grown into the…
12 companies named
Who backs HA
Every company HA names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Medtronic | Corporate partner | AMSN ACS ASCA AAFP AAPMR +3 |
| Aesculap | Corporate partner | AAGL APRN CNS NASS SAGES |
| Hyperfine | Corporate partner | CNS RSNA |
| Clarus Medical | Meeting sponsor | CNS |
| Longeviti Neuro Solutions | Corporate partner | CNS |
| Anuncia MedicalPublished as Anuncia - SILVER | Meeting sponsor | Only HA, so far |
| CereVascPublished as CeraVasc | Corporate partner | Only HA, so far |
| Cerulean ScientificPublished as Cerulean - Copper | Meeting sponsor | Only HA, so far |
| Codman Specialty SurgicalPublished as Codman Specialty Surgical, an Integra LifeSciences Company | Corporate partner | Only HA, so far |
| Kitea Health | Meeting sponsor | Only HA, so far |
| Locust Cider | Corporate partner | Only HA, so far |
| MadSciPublished as MadSci - COPPER | Meeting sponsor | Only HA, so far |
| RhaeosPublished as Rhaeos - Copper | Meeting sponsor | Only HA, so far |
Sources: 2 published lists, read October 2026
Corporate Partners. Read October 6, 2026. Companies the association lists as its corporate partners.
Thank You 2026 HA CONNECT Sponsors. Read October 6, 2026. Company sponsors of HA CONNECT 2026, the National Conference on Hydrocephalus, by level.
Who backs HA's peers, but not HA
Companies named publicly by at least one of HA's five peer societies, and not found in HA's reviewed public records.
| Company | FSARA | CPARF | MGFA | Sjögren's Foundation | Peers |
|---|---|---|---|---|---|
| AmgenPublished as Amgen Rare Disease | Named | Presenting Partners | Gold Members | 3 of 4 | |
| argenxPublished as argenx (logo) | Presenting Partners | Gold Members | 2 of 4 | ||
| Johnson & JohnsonPublished as Johnson & Johnson (logo) | Presenting Partners | Gold Members | 2 of 4 | ||
| NovartisPublished as Novartis (logo) | Collaborating Partners | Platinum Member | 2 of 4 | ||
| Vor BioPublished as VOR (logo) | Supporting Partners | Bronze Members | 2 of 4 | ||
| AkinPublished as Akin R_SG-02 | Named | 1 of 4 | |||
| AlexionPublished as Alexion (logo) | Presenting Partners | 1 of 4 | |||
| Alexion Pharmaceuticals | Named | 1 of 4 | |||
| Amalie Oil Company | Named | 1 of 4 | |||
| ArcellxPublished as Arcellx (logo) | Supporting Partners | 1 of 4 | |||
| AristocratPublished as Aristocrat Blue Logo | Named | 1 of 4 | |||
| Arrowhead Pharmaceuticals | Named | 1 of 4 | |||
| BarclaysPublished as Barclays-Logo | Named | 1 of 4 | |||
| Big Timber Cattle Company | Named | 1 of 4 | |||
| Biogen | Core Program Sponsor | 1 of 4 | |||
| Biohaven Pharmaceuticals | Named | 1 of 4 | |||
| Biologics by McKesson | Named | 1 of 4 | |||
| Boehringer IngelheimPublished as Boehringer Ingelheim Logo | Friend of the Foundation | 1 of 4 | |||
| Bristol Myers SquibbPublished as BMS logo | Silver Members | 1 of 4 | |||
| Brown & Brown | Named | 1 of 4 | |||
| Cartesian TherapeuticsPublished as Cartesian (logo) | Collaborating Partners | 1 of 4 | |||
| Catalyst PharmaceuticalsPublished as Catalyst Logo | Collaborating Partners | 1 of 4 | |||
| Columbia Food ServicePublished as Columbia Food Service Co., Inc. | Named | 1 of 4 | |||
| Cosette PharmaceuticalsPublished as Cosette Logo | Friend of the Foundation | 1 of 4 | |||
| Cullinan TherapeuticsPublished as Cullinan Logo | Bronze Members | 1 of 4 | |||
| Design Therapeutics | Named | 1 of 4 | |||
| Duncan Real Estate | Named | 1 of 4 | |||
| El Dorado Holdings | Named | 1 of 4 | |||
| EMD SeronoPublished as EMD Serono (logo) | Supporting Partners | 1 of 4 | |||
| Evernorth Health ServicesPublished as Evernorth Health Services (logo) | Supporting Partners | 1 of 4 | |||
| Foley, Baron, Metzger & Juip | Named | 1 of 4 | |||
| Goldman SachsPublished as Goldman Sachs_Wordmark_Black | Named | 1 of 4 | |||
| Hudson Bay | Named | 1 of 4 | |||
| Huffman & Huffman Brothers-In-Law | Named | 1 of 4 | |||
| ImmunovantPublished as Immunovant (logo) | Supporting Partners | 1 of 4 | |||
| InfuCareRxPublished as InfuCareRx (logo) | Supporting Partner | 1 of 4 | |||
| InsmedPublished as insmed logo | Bronze Members | 1 of 4 | |||
| InsperityPublished as Insperity-Logo-300x64 | Named | 1 of 4 | |||
| IpsenPublished as Ipsen Logo 1 | Named | 1 of 4 | |||
| JefferiesPublished as Jefferies_Logo_Black_150dpi | Named | 1 of 4 | |||
| Kirkland & EllisPublished as Kirkland & Ellis (Elite Blue RGB) (5) | Named | 1 of 4 | |||
| Larimar Therapeutics | Core Program Sponsor | 1 of 4 | |||
| Leon Max | Named | 1 of 4 | |||
| Lexeo Therapeutics | Named | 1 of 4 | |||
| Macquarie | Named | 1 of 4 | |||
| Merck KGaAPublished as MERCK (logo), merckgroup.com | Collaborating Partners | 1 of 4 | |||
| Merz TherapeuticsPublished as MERZ THERAPEUTICS-Logo VC vertical WO tagline 2000Px | Named | 1 of 4 | |||
| Neurocrine Biosciences | Named | 1 of 4 | |||
| NMD PharmaPublished as NMD Pharma (logo) | Supporting Partners | 1 of 4 | |||
| Notis Professional Services | Named | 1 of 4 | |||
| OtsukaPublished as Otsuka Logo | Silver Members | 1 of 4 | |||
| PTC Therapeutics | Named | 1 of 4 | |||
| PwCPublished as PwC_logo_rgb_colour_pos 1 | Named | 1 of 4 | |||
| Raymond James Financial | Named | 1 of 4 | |||
| RegeneronPublished as Regeneron (logo) | Supporting Partners | 1 of 4 | |||
| Resolve TherapeuticsPublished as Resolve logo | Bronze Members | 1 of 4 | |||
| Servier | Named | 1 of 4 | |||
| Shumaker, Loop & Kendrick | Named | 1 of 4 | |||
| Solid Biosciences | Named | 1 of 4 | |||
| Southern Pine Timber Products | Named | 1 of 4 | |||
| Stealth BioTherapeutics | Named | 1 of 4 | |||
| Stellar Realty | Named | 1 of 4 | |||
| UBSPublished as UBS Logo | Named | 1 of 4 | |||
| UCBPublished as UCB (logo) | Collaborating Partners | 1 of 4 | |||
| Vanguard Protex Global | Named | 1 of 4 | |||
| Vertex PharmaceuticalsPublished as Vertex (logo) | Supporting Partners | 1 of 4 | |||
| Voyager Therapeutics | Named | 1 of 4 | |||
| WaymoPublished as Waymo_logo_final | Named | 1 of 4 | |||
| Wilspec Technologies | Named | 1 of 4 |
The outside view
A parent support group that began at UCSF in 1983 and grew into the largest nonprofit, nongovernmental funder of hydrocephalus research in the United States, still built around the families who live with the condition.
- Consensus
- Build
- Outward
- Volunteer
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Frontier and The Village.
Strengths
Not an official page of Hydrocephalus Association. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.