Guthy-Jackson Charitable Foundation
A disease focused foundation created by a family after their daughter's diagnosis, singularly devoted to funding the basic and clinical research needed to treat and ultimately cure neuromyelitis optica.
Financial profile
Guthy-Jackson Charitable Foundation · EIN 26-6461545 · 501(c)(3)
| Fiscal year | Total revenue | Contributions | Program services | Total expenses | Net assets | Year end |
|---|---|---|---|---|---|---|
| FY2023 | $1,263,843 | $2,567,038 | $1,430,414 | Dec 2023 | ||
| FY2022 | $4,988,091 | $2,712,396 | $2,635,751 | Dec 2022 | ||
| FY2021 | $1,810,112 | $2,429,666 | $449,330 | Dec 2021 | ||
| FY2020 | $3,093,396 | $2,299,142 | $1,068,884 | Dec 2020 | ||
| FY2019 | $3,991,896 | $3,734,360 | $207,142 | Dec 2019 | ||
| FY2015 | $7,230,917 | $5,281,013 | $604,236 | Dec 2015 |
Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.
Peer societies
Five societies Guthy-Jackson Charitable Foundation is read alongside.
SMAF
Spinal Muscular Atrophy Foundation
A disease focused foundation that drives the science from target to therapy, accelerating drug development…
NF
Nephcure Foundation
A patient-founded force that turned a rare, misunderstood kidney disease into an organized cause with a…
9 companies named
LF
LAM Foundation
A patient founded rally against a single rare disease
3 companies named
CHNF
Craig H Neilsen Foundation
The largest private funder of spinal cord injury research, rehabilitation, and independent living, born from…
AMDF
American Macular Degeneration Foundation
A patient centered foundation devoted entirely to macular degeneration, pairing plain spoken education and…
Who backs GJCF
Every company Guthy-Jackson Charitable Foundation names publicly as a supporter, exactly as published. Companies also named by other associations on Sociogene come first.
| Company | Support as published | Also named by |
|---|---|---|
| Alexion | Corporate partner | AAN AASLD AANEM ACC ANA +3 |
| Amgen Rare Disease | Corporate partner | AAAAI AAFP AAN AAO AAPA +3 |
| Biogen | Corporate partner | AAN AAO AAI AANEM ACNM +3 |
| Genentech | Corporate partner | AMCP AAAAI AAFP AAN AAO +3 |
| Novartis | Corporate partner | AAD AAN AACR AANEM ACS +3 |
| Opexa | Corporate partner | Only Guthy-Jackson Charitable Foundation, so far |
Sources: 2 published lists, read September 2026
2025 GJCF Pre-ECTRIMS NMOSD Practicum industry sponsors. Read September 28, 2026.
Industry Council. Read September 28, 2026. Industry Council members and Emeritus Members as shown on the page as read (undated).
Who backs Guthy-Jackson Charitable Foundation's peers, but not Guthy-Jackson Charitable Foundation
Companies named publicly by at least one of Guthy-Jackson Charitable Foundation's five peer societies, and not found in Guthy-Jackson Charitable Foundation's reviewed public records.
| Company | NF | LF | Peers |
|---|---|---|---|
| Aetna | History Room Sponsor | 1 of 2 | |
| Astrazeneca-logo | Silver Sponsor | 1 of 2 | |
| Boehringer-Ingelheim-Logo-Light-Green | Platinum Sponsor | 1 of 2 | |
| calliditas | Silver Sponsor | 1 of 2 | |
| David Vaughan Investments | Breath of Hope Gala Table Sponsors | 1 of 2 | |
| Ozark Ready Mix | Breath of Hope Gala Table Sponsors | 1 of 2 | |
| Travere-Logo-CDTAC-2025 | Presenting Sponsor | 1 of 2 | |
| Vera-Logo-Color | Silver Sponsor | 1 of 2 | |
| vertex-logo-current-partnership-page | Platinum Sponsor | 1 of 2 |
The outside view
A disease focused foundation created by a family after their daughter's diagnosis, singularly devoted to funding the basic and clinical research needed to treat and ultimately cure neuromyelitis optica.
- Authority
- Build
- Outward
- Operational
Their shape
The Movement
Gathered around a cause, and built to move.
The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.
Also reads toward The Frontier and The Citadel.
Strengths
Not an official page of Guthy-Jackson Charitable Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.