Spinal Muscular Atrophy Foundation

A disease focused foundation that drives the science from target to therapy, accelerating drug development for spinal muscular atrophy until treatments reach patients.

Financial profile

Spinal Muscular Atrophy Foundation · EIN 01-0759380 · 501(c)(3)

Fiscal yearTotal revenueContributionsProgram servicesTotal expensesNet assetsYear end
FY2023$12,507,750$3,641,528$31,470,718Dec 2023
FY2022$25,419,539$4,039,863$22,557,909Dec 2022
FY2021$123,312$1,172,774$1,177,554Dec 2021
FY2020$3,420,578$2,607,545$2,224,780Dec 2020
FY2019$192,934$1,361,565$1,414,662Dec 2019
FY2015$5,485,088$6,034,553$-102,291Dec 2015

Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.

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Peer societies

Five societies Spinal Muscular Atrophy Foundation is read alongside.

Who backs SMAF

No public supporter list found as of September 2026.

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The outside view

A disease focused foundation that drives the science from target to therapy, accelerating drug development for spinal muscular atrophy until treatments reach patients.

  • Authority
  • Build
  • Outward
  • Operational

Their shape

The Frontier

At home at the edge of what comes next.

The Frontier is restless and pioneering, always testing what comes next. Its gift is innovation and adaptability, its challenge is focus, and not leaving its longtime members behind.

Also reads toward The Movement, The Citadel and The Legacy.

Strengths

→You move toward the unknown while others wait for certainty.
→Decisions are made and acted on, and momentum rarely stalls in committee.
→Your field watches you for what's next, not what came before.

Not an official page of Spinal Muscular Atrophy Foundation. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.