Childrens Fund for Glycogen Storage Disease Research

A wholly volunteer, family founded fund that channels community fundraising into research and gene therapy trials for a single rare childhood disease.

65named by peers

Financial profile

Childrens Fund for Glycogen Storage Disease Research · EIN 04-3638491 · 501(c)(3)

Fiscal yearTotal revenueContributionsProgram servicesTotal expensesNet assetsYear end
FY2023$292,913$234,383$0$84,668$1,354,107Dec 2023
FY2022$552,956$534,521$0$214,144$1,102,245Dec 2022
FY2021$610,420$457,366$0$291,418$828,140Dec 2021
FY2020$235,881$234,232$0$58,818$522,385Dec 2020
FY2019$412,759$367,022$0$839,875$312,562Dec 2019
FY2018$387,103$336,595$0$853,767$725,720Dec 2018

Figures exactly as reported. A blank cell was blank on the form. The fiscal year links to the filing.

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Peer societies

Five societies Childrens Fund for Glycogen Storage Disease Research is read alongside.

Who backs CFGSD

No public supporter list found as of September 2026.

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Who backs Childrens Fund for Glycogen Storage Disease Research's peers, but not Childrens Fund for Glycogen Storage Disease Research

Companies named publicly by at least one of Childrens Fund for Glycogen Storage Disease Research's five peer societies, and not found in Childrens Fund for Glycogen Storage Disease Research's reviewed public records.

CompanyLFBFAGSAFCPeers
111SKINNamed1 of 3
AetnaHistory Room Sponsor1 of 3
Apres CaviarNamed1 of 3
Armand de BrignacNamed1 of 3
Baked by MelissaNamed1 of 3
BIRC cleanNamed1 of 3
Caffe NapoliNamed1 of 3
challenge-ac-logoNamed1 of 3
CLR logoNamed1 of 3
CM Racing logoNamed1 of 3
Competitive Image logoNamed1 of 3
connextion_logoNamed1 of 3
David Vaughan InvestmentsBreath of Hope Gala Table Sponsors1 of 3
DCS ServicesNamed1 of 3
Death Ride logoNamed1 of 3
energy lab logoNamed1 of 3
Foundation MedicineNamed1 of 3
Grande CosmeticsNamed1 of 3
grip (lyramid.com)Named1 of 3
Guerlain SpaNamed1 of 3
Hamptons MuseNamed1 of 3
Happy DadNamed1 of 3
HRLM ChampagneNamed1 of 3
IncyteNamed1 of 3
IronmanNamed1 of 3
Jefferson’s WhiskyNamed1 of 3
LALO TequilaNamed1 of 3
LAVANamed1 of 3
Let’s Sprinkle by MGNamed1 of 3
Lorraine SchwartzPresented by1 of 3
Lucky EnergyNamed1 of 3
LVHNamed1 of 3
Lyre’s MocktailNamed1 of 3
MariposaNamed1 of 3
Millennium TakedaNamed1 of 3
Minuteman PressNamed1 of 3
MuscariNamed1 of 3
MYGEMMANamed1 of 3
Naviva®Named1 of 3
NBXNamed1 of 3
nightmarelogoNamed1 of 3
Ozark Ready MixBreath of Hope Gala Table Sponsors1 of 3
patchnrideNamed1 of 3
Pernod RicardNamed1 of 3
Peter Thomas RothNamed1 of 3
ProMixNamed1 of 3
Rami ChocolatesNamed1 of 3
Reason2RaceNamed1 of 3
rev3Named1 of 3
Reve TravelNamed1 of 3
Rumor RoseNamed1 of 3
Spring 44 GinNamed1 of 3
sweat wipeNamed1 of 3
swim bike momNamed1 of 3
TheEnduranceCultLogoNamed1 of 3
Tito’s Handmade VodkaNamed1 of 3
Tres ChiconNamed1 of 3
Treveri Cellars ProseccoNamed1 of 3
TriManiaLogoNamed1 of 3
tritheworldNamed1 of 3
TTBikeFitNamed1 of 3
ValmontNamed1 of 3
Webster BankNamed1 of 3
Windsor International LimoNamed1 of 3
xterra20logo1Named1 of 3

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The outside view

A wholly volunteer, family founded fund that channels community fundraising into research and gene therapy trials for a single rare childhood disease.

  • Consensus
  • Build
  • Outward
  • Volunteer

Their shape

The Movement

Gathered around a cause, and built to move.

The Movement is mission-led and built to mobilize, organized around changing something in the world. Its gift is passion and external impact, its challenge is turning momentum into something that lasts.

Also reads toward The Village and The Frontier.

Strengths

→Real influence on the wider field.
→Members are motivated by a clear why.
→Quick to rally around what matters now.

Not an official page of Childrens Fund for Glycogen Storage Disease Research. Sociogene does not consult. Everything here comes from public sources, dated and linked. Something wrong here? Tell us what we missed.